I still don't understand about the seizures. Why are the doctors not doing anything about those? Who is witnessing those? A seizure is very serious and can be life threatening.
Ok soback to the questions. We chat on Mondays. It is 4 pm pacific, 5 pm mountain, 6 pm standard and 7 pm eastern.
You are welcome to post in any board on HW, but you are not supposed to put the same post all over the place. Try to make your question specific to that board. I am not sure why the rule about duplicate posts but I think it is to keep people from just using up a bunch of space. Sometimes we get cyber-hypochondriacs and they use up a ton of server space for their attention seeking needs.
We don't really have one place that lists everyone's story or background. Just keep reading threads....lol. If you want to know how people were diagnosed just ask.
Everyone has a very different story. MS is so varied that it is usually misdiagnosed for years. It all depends upon what part of the brain is being damaged by the demylenation. For me, I developed vertigo..it continued to worsen until I was wall walking. That that point my husband took me to the hospital. I was admitted. I was misdiagnosed with stroke. I flared again 4 weeks later..........at that point they found multiple lesions. They did the spinal tap, the evoked potentials, blood work, neuro exam by two neurologists and the rest is history.
Have you had an MRI? or just the ct scan? My ct scan showed nothing .........it was the MRI that indicated lesions. If you have an MRI that shows no lesions....then most doctors will not diagnose you with MS. There is a very good chance it is something else.
Good luck on your quest for answers.
Gretchen co-moderator MS board diagnosed with MS July 2006
I have no lesions on my soul and so I will live with no limits.