Gretchen or Getrude?

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mystery reader
Regular Member


Date Joined Jun 2007
Total Posts : 257
   Posted 1/28/2009 3:12 PM (GMT -7)   
Hey G!  How did your appointment go?
Barb/mystery reader
Diagnosed April 2007
Started betaseron --  May 2007 -- experienced allergic reactions after 2 weeks
Started copaxone -- June 2007 -- stopped after 4 1/2 months;experienced  severe 5 IPIR's
Started tysabri -- December 2007
Stopped tysabri -- April 2008 (developed antibodies/severe reactions)


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3550
   Posted 1/28/2009 7:29 PM (GMT -7)   

Ok for you all you who don't know that story.......the school I work for decided to raise the thermostat (they are locked) to save money.  My room does not get any AC until it is 74 degrees.  Well with 35 eleven-year-olds, my room gets really hot before it starts to cool off.  I have requested my thermostat be adjusted down 2 lousy degrees so I am not staggering around.  I have submitted all the appropriate paperwork but my district was still fighting it.  They decided that I needed to see a 3rd party doctor to verify that I indeed have MS and that I am temperature sensitive.

So what Barb is asking about is that 3rd party appointment that I had yesterday. 

I went to a very nice local neurologist.  He is not an MS specialist but he knew his stuff.  He wanted to know who I angered in the disctrict for them to be asking for a 3rd party doctor evual. on such an obvious "reasonable accommodation" claim.  Hehehe.  He did an exam and took a full history of my diagnosis and he viewed my MRI CD.  He is recommending that my room be set at 72% so that I may teach without a risk to my health. 

He was a card........one of his exam questions was "Are there any teachers at your school better than you?"  Hahahahah...........NO.  And......when I asked him what his recommendation will be, he joked......"I am going to tell them to turn up the heat and see if you fall!" 

Love, Gertrude!


Gretchen       co-moderator MS board       diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 1/28/2009 9:51 PM (GMT -7)   
.....hehe.... i like Gertrude.... can we just call her Gertie???
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*
 
Things that make u go hummmm......
*I wonder how much deeper the ocean would be without sponges.*
*One day without sunshine is like...um..well...night?*


mystery reader
Regular Member


Date Joined Jun 2007
Total Posts : 257
   Posted 1/28/2009 11:27 PM (GMT -7)   
Gertie, that is great news! So who did you anger in the district adm?
Barb/mystery reader
Diagnosed April 2007
Started betaseron --  May 2007 -- experienced allergic reactions after 2 weeks
Started copaxone -- June 2007 -- stopped after 4 1/2 months;experienced  severe 5 IPIR's
Started tysabri -- December 2007
Stopped tysabri -- April 2008 (developed antibodies/severe reactions)


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3550
   Posted 1/29/2009 7:20 AM (GMT -7)   

Sheeesh!!! No one!! 

My principal is SOMETIMES tired of my pranks......but she knows I am a GREAT teacher and puts all the problem children in my room.  Once placed in my room, she gets the year off.......I manage expceptional kids really well. 

Perhaps it was the time I sprayed her with the super soaker?  I was aiming for the back of her head......I didn't know she was going to turn around!!

The only other one in the district that knows me(amoung the higher ups) likes me!!  (Even though she over-heard a really bad, lots of swearing diatribe in the district office parking lot)  I will never re-hire that internal editor!!!  Muahahahahahahahaha!!!!!!


Gretchen       co-moderator MS board       diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


pokey79
Regular Member


Date Joined Aug 2007
Total Posts : 144
   Posted 1/29/2009 12:32 PM (GMT -7)   
Good for you Gretchen/Gertie...I am glad everything worked out for you.....Now you can be "cool" everybody else will just have to wear their sunglasses when they are near you....barb cool
diaganosed 1983
avonex once weekly
steroid infusion every three months for three days
mycoline three times a day
fosamax once a week
bladder meds. daily
calcium/multivitiams
synthyroid
 
 


Beau2006
Regular Member


Date Joined Apr 2006
Total Posts : 388
   Posted 1/29/2009 3:36 PM (GMT -7)   

Hi there - gees your school people would freeze if I was there, I keep our house at 67-68 .....do I get complaints at home - oh ya, but then throw them a nice warm blanket to cuddle in!!!!!

 

Gary


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3550
   Posted 2/11/2009 8:22 PM (GMT -7)   

Ok well, I have resolution.  I had the final meeting on my ADA reasonable accommodation request.  After reading the 3rd party doctor evaluation my district has decided to lower my locked thermostat by two degrees.  Yay!!!  I will be comfortable when it gets hot in the spring and early summer.

I also had my bi-annual neuro exam.  All is good.  My doctor was very happy with my exam and reflexes.  She is allowing me to have my next MRI without contrast since I am showing no significant signs of inflammation.  Yay!!! 

And, as is tradition, we spent the next part of the day playing!!!  Tim and I went to the Getty Art Museum and spent a few hours looking at the impressionist paintings.  After that, we had a very nice lunch.  All in all, it was a wonderful day!!!!

My neuro said that Claderbine will probably be the next approved med.  She thought it looked pretty good.  She said it should be out in the next 18 months as a mono-therapy.  It might eventually be studied as a combined therapy for either interferons or copaxone.  Due to the problems with Tysabri as a combined therapy, it may be several years before Claderbine could be approved as a combined therapy.


Gretchen       co-moderator MS board       diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.

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