Cytoxan treatment

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New Member

Date Joined Feb 2009
Total Posts : 4
   Posted 2/5/2009 8:27 AM (GMT -7)   
Hello, is anyone willing to share experiences with us? My son is 30 years old, was diagnosed with MS two years ago. He has tried Avonex and Copaxone without much result and is pretty much in constant relapse. He has has IV steroid treatment several times, with only temporary results. His neurologist has suggested Cytoxan treatment.  We are pretty frightened and anxious about trying this. Advice from anyone who has had this, please?

Regular Member

Date Joined Jan 2009
Total Posts : 38
   Posted 2/5/2009 12:49 PM (GMT -7)   
Hello ColumbusMom,

I'm sorry your son is having so many problems. When I was in constant relapse mode, my doctors put me on Cytoxan too. For me, it did stop the relapses, but I was sick & slept for three weeks, would have to get blood count checks in between (to make sure my white blood count was low / knocking out my immune system), and then by the fourth week I'd feel pretty good, but then the 5th week came and the round of Cytoxan would start again. For me, I chose to not continue. After my neurologist told me all they had left for me was chemo (Cytoxan), I sought a 2nd opinion from a Naturpathic Doctor (ND). It's been three years, and I feel amazing. But this was the path I chose and it took a lot of work.

I'm not sure if this helped?!? Please keep us updated on how he's doing.

Take care,
Stay at home Mom
wheat / dairy free & organic since 2007 -- amazing difference!
Diagnosed with RR MS 11/2001
Copaxone and starting LDN
Healing more and more every day
Andrea :)

Regular Member

Date Joined Dec 2008
Total Posts : 196
   Posted 2/9/2009 1:18 PM (GMT -7)   

Columbus Mom,

I have had cytoxin treatments and they did wonders for me. They are only short term though. I am waiting to go back on them either this week or next, whenever my neuro schedules it for me. Just have your son drink plenty of water, I think that is the key. God Bless you.

                                        Chuck the old man :>)
                                   AMWTP Training Instructor
                                          Idaho Falls, Idaho
                                  Diagnosed with PPMS May, 2006
                                   but still working at the present.         
                Tried just about everything there is for MS, including Tysabri
                               Waiting to start Cytoxin Treatments soon.

Post Edited (bohuck2) : 2/13/2009 12:56:01 PM (GMT-7)

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