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Katie7
Regular Member


Date Joined Apr 2008
Total Posts : 114
   Posted 2/15/2009 10:38 AM (GMT -7)   
? about this med. I just started taking in for spasum. How long before i notice relief? I noticed nobody answered my last last post cry anyone else on this med?

Hugs~Katie


<FONT color=#800080> Diagnosed w/MS~ August 2008
Diagnosed w/Celiac 2009
Casein allergy~since forever


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3547
   Posted 2/15/2009 1:49 PM (GMT -7)   
Katie,
 
You should notice results pretty quick.  It is supposed to get better with long term use (that is what I have heard anyway) but you should notice it working after 45 minutes or so.  If you are not noticing a difference then ask for an increase in dosage.  It works for most people but that does not mean it works for everyone.  Good luck.  I am sorry I missed your other request for info!!! 
 
PS - My horse is mud swamped with more rain on the way!!!  Poor guy!!  I feel so bad for him. shakehead
Gretchen       co-moderator MS board       diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


bohuck2
Regular Member


Date Joined Dec 2008
Total Posts : 196
   Posted 2/16/2009 1:48 PM (GMT -7)   
Katie,
I also must have missed your last request on Baclofen. I have been on it for a little longer than a month and I take 10 mg three times a day and it seems to help me. Can't really tell you when it started to work because being a guy, we don't notice those kinds of things too much, if you know what I mean? :-) We would only notice if it didn't help. Good luck to you my friend.


 
 
 
 
                                        Chuck the old man :>)
                                   AMWTP Training Instructor
                                          Idaho Falls, Idaho
                                  Diagnosed with PPMS May, 2006
                                   but still working at the present.         
                Tried just about everything there is for MS, including Tysabri
                               Waiting to start Cytoxin Treatments soon.


popsie
Regular Member


Date Joined Aug 2008
Total Posts : 271
   Posted 2/17/2009 2:42 AM (GMT -7)   
Hi Katie,

I found that oral baclofen did help (10mg) but I also had an allergic reaction to it so did not take it for the next 7 years. Then the spasms and spasticity became intolerable & now I have a baclofen pump. After the pump was implanted I went from 24 hr continuous intolerable pain (beyond 10/10 spasms in the foot, leg & pain on surface of skin) to 80% pain free in 12 hours. After 6 months I lost the dull ache in buttocks & thigh, the stinging hornets & pins & needles. I am now totally pain free for the first time in 12 years so it definitely is cumulative. I am sooo happy. Spasticity is about 60% better & could be much better if I could tolerate a higher dose but it makes me shake, thoughI have found exercise has improved this enough for me to increase the dose a bit.

Try a high dose of baclofen & physio and see if that helps. The neuro explained that the exercise is very NB because the more the muscle tightens the greater the spasm the worse the pain & it becomes a viscious circle. All the best wink wink
Have had relapsing/remitting MS since 10 yrs old. Secondary/progressive since 1995.
Row, row, row your boat gently down the stream
Merrily , merrily, merrily, life is but a dream


Katie7
Regular Member


Date Joined Apr 2008
Total Posts : 114
   Posted 2/17/2009 9:19 AM (GMT -7)   
Yep they increased my Baclofen and I am doing much better! I have this bad cold right now that I have had for a little over a week. I can't help but wonder if this triggered it for me? Anyway, am feeling better and cold is beginning to break up some. Now if my energy would kick in. Hey, at least the Sun is out today!

Thanks to all of your for your responses and guidance....once again, ........I love ya all! I will be back to post more once I get over this darn cold, which I must as I am flying out to Ca. to help my sister in law recoup after hip surgery next month! Hate the idea of the long flight, but hate the idea even more if I dont get over this cold bug i have right now. Toodles~Kate

Hugs~Katie


<FONT color=#800080> Diagnosed w/MS~ August 2008
Diagnosed w/Celiac 2009
Casein allergy~since forever


Stella Marie
Veteran Member


Date Joined May 2005
Total Posts : 601
   Posted 2/18/2009 1:16 AM (GMT -7)   
Baclofen has been a life savor for me. I started with 10 mg 3 x a day but found I needed more over time. Baclofen usually kicks in between 30 - 45 minutes. Since it relaxes muscles, I found at higher doses I had a terrible problem with daytime sleepiness. Doctors generally prescribe up to 120 mg per day orally. If you need more that that, it is time to consider a Baclofen pump. I love mine. Other medications commonly used for spasms are Zanaflex, Soma, and Robaxin.

Good luck.

Stella Marie

Rare neurodegenerative disease called “Multiple System Atrophy”.  Wheelchair, O2, & Bipap, intrathecal pump, Neurostimulator, dystonia, neuropathic pain and spasticity.


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3547
   Posted 2/18/2009 7:17 AM (GMT -7)   
Stella Marie,
 
Thank you for your imput.  I appreciate your willlingness to share your experiences.  I am sure everyone here will benefit.  Again, thanks for taking the time.  I am so glad to hear that the pump is working for you.  I have hear nothing but good things about that.
Gretchen       co-moderator MS board       diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.

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