When in doubt, always opt for a second opinion. I was evaluated by two neurologists who misdiagnosed. A third at the major teaching institution nailed it. With some neurodegenerative diseases it does take time for specific markers and symptoms to develop before a probable dx can be made. If a doctor is ever offended that you are getting a second opinion - then he or she scares me. Most specialists have an
open door policy and are never offended when a competent peer does a reevaluation. An inappropriate treatment plan can ruin the quality of your life.
Rare neurodegenerative disease called “Multiple System Atrophy”. Wheelchair, O2, & Bipap, intrathecal pump, Neurostimulator, dystonia, neuropathic pain and spasticity.