I am totally in agreement with Gretchen. I think exercise is essential. Do as much as you can of whatever you find helpful. And try to never stop. For years I controlled the spasticity with exercises (some I found in a book written by a lady with MS, sorry I cannot remember the name). Not a lot but some every day. Then I was told to stop & that the exercises were increasing the spasms. OK, I thought, I will stop for 2 weeks & see. Well, stopping exercising did NOT help the spasms & in that short time the spasticity increased so much I could not start exercising again.
Then I went into a downward spiral for two years with the spasticity just increasing all the time. The worse the spasticity the less exercise I could do, the worse the pain became, it was a viscious circle. As the spasticity increased so did the pain until I had pain beyond 10/10 virtually continuously. Then I got a baclofen pump – now no pain and much less spasticity. It is miraculous. I have my life back. I am able to exercise again & I find that it definitely helps the weakness that can be a side effect of baclofen.
Exercise also helps the balance – I use the balance games on Wii fit for this. I also have a stepper (good to use when you are on the phone) a cross trainer (I read while I am doing this) for some aerobic stuff & some exercises from the MS physio for the core (a stronger core helps the walking). A swiss ball is good for this & then you can sit on it when you are at the computer or watching TV. As you can see I find the best way for me to exercise is to build it into my life. Stops the boredom & the fatigue. I practice standing on one leg at the sink or walking down stairs correctly. Weights you strap around the ankles can help if your walking is deteriorating.
I found it interesting that when I was in hospital having the pump implanted a 24 year old came in with pain down her whole right side. She did not get any help from any meds. At first they thought she had MS then they dxd chronic pain syndrome triggered by a fall. What did the drs prescribe – exercise!!! Took a couple of months & she came good.
Heat is a problem where I live so I try to exercise early when it is still cool or indoors with the air con/fan. What seemed to help that dreadful fatigue for me was trying to eat as well as possible - lots of fresh fruit, vegies & low fat protein. Organic, if possible. Sorry, such a long post but I kept thinking of new things, I hope some of it helps.
Have had relapsing/remitting MS since 10 yrs old. Secondary/progressive since 1995.
Row, row, row your boat gently down the stream
Merrily , merrily, merrily, life is but a dream