NMO or Devic's Disease(has anyone heard of this?)

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Tertle
Regular Member


Date Joined Jul 2007
Total Posts : 108
   Posted 3/3/2009 8:42 PM (GMT -7)   
Well, I went to a checkup with my Neuro yesterday. He has been in contact with a MS specialist who I am actually seeing tomorrow morning. Anyways my neuro said they are looking into this NMO or Devic's as a possibility and cause of my ON in my other eye. I had blood work done which they had to send to the Mayo Clinic so I won't know anything for about a week. But I'm basically confused and just lost on this whole thing. If anyone out there knows about this let me know. I've been reading as much as I can online about it. Thanks
-Tertle(Andy)


rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 3/4/2009 9:40 AM (GMT -7)   
Hey Andy

I know u'r scared and worried, but try to take a deep breath and give u'rself a break til u get the results of that blood work and until u see the specialist. Yes, i've heard of this, but it seems more of a rarity. Hang on friend. We are with u and sending up special prayers and good thoughts for u. Please let us know how the appt goes and the results of the blood work. Take care friend and please come vent or talk here as much as u may want.
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*
 
Things that make u go hummmm......
*I wonder how much deeper the ocean would be without sponges.*
*One day without sunshine is like...um..well...night?*


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3550
   Posted 3/4/2009 4:45 PM (GMT -7)   
Hi Andy,

I second what Rhonda has said here. I would just wait that one out and try not to worry too much....easier said than done, I know. Devics is quite rare and it is definitely not unheard of to be misdiagnosed with MS and to later have that changed to Devics. I wish you the best of luck. Hang in there. Please let us know what your results are.
Gretchen       co-moderator MS board       diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


Tertle
Regular Member


Date Joined Jul 2007
Total Posts : 108
   Posted 3/5/2009 2:01 PM (GMT -7)   
Thanks guys I appreciate it!!
-Tertle(Andy)


Tertle
Regular Member


Date Joined Jul 2007
Total Posts : 108
   Posted 3/10/2009 8:08 AM (GMT -7)   
Got good new's this morning. The blood test for NMO came back Negative!!!! I feel so much better about it. Now the decision is what meds to switch to Tysabri or Rituxan. Oh well the prayers and thoughts worked. Thanks all
-Tertle(Andy)


rhondab
Veteran Member


Date Joined Mar 2006
Total Posts : 2146
   Posted 3/10/2009 9:42 AM (GMT -7)   
O WOW!!!! Great news andy!!! I'm so glad to hear this and hope u will be able to relax and take u'r time deciding which meds to go on. Take care and congrats!!!
rhonda
Co-Moderator, MS Forum
 
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*
 
Things that make u go hummmm......
*I wonder how much deeper the ocean would be without sponges.*
*One day without sunshine is like...um..well...night?*


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3550
   Posted 3/10/2009 1:48 PM (GMT -7)   
Andy!!! That is great. Now, get better, feel better!!!!!

Gretchen       co-moderator MS board       diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


Tertle
Regular Member


Date Joined Jul 2007
Total Posts : 108
   Posted 3/11/2009 7:06 AM (GMT -7)   
Yea, I need to relax now and decide. It's to bad that Copaxone isn't working for me. The PLM or whatever that brain disease is from Tysabri is called kinda scares me a little. I guess I'll just have to make sure that I'm off the Copaxone for awhile before I start it.

Well thanks for the support.
-Tertle(Andy)

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