Anyone suffer from MS and another autoimmune disease?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

vandygrad97
Regular Member


Date Joined Nov 2003
Total Posts : 66
   Posted 3/5/2009 7:41 PM (GMT -7)   
Hi friends,
 
I have Crohn's Disease and I have recently been diagnosed with "probable" MS from a wonderful group of doctors at Johns Hopkins and am going back this month for 3 more tests-lumbar puncture, MRI of spine, and VEP.  My MRI showed evidence of 9 abnormal lesions and I've been having the classic symptoms: blurred vision, dizziness, numbness/tingling, sensation issues, weak muscles, etc...I also have a Vitamin D and B-12 deficiencies.  Do any of you suffer from other autoimmune diseases as well as MS, and if so, how do you function?
 
Thanks,
Vandygrad97
(I posted this on the Crohns page as well.)

We are the music makers, we are the dreamers of dreams. . .
 
Diagnosed at age 26 with small bowel Crohn's disease; also have enteropathic arthritis, fibromyalgia/myofascial pain syndrome, gallstones and gallbladder removal, kidney stones,erythema nodosum, eye inflammation, hiatal hernia, GERD, lactose intolerant, migraines, Vitamin B-12 deficiency
 
Waiting on probable Multiple Sclerosis diagnosis from Johns Hopkins-abnormal MRI containing 9 lesions, experiencing headaches, blurred vision-possible Optic Neuritis, dizziness, numbness/tingling, vibration sensation while resting, muscle weakness, Vitamin D deficiency
 
Medications: Pentasa, Nexium, Salsalate, Lactose pill, Tramadol


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3550
   Posted 3/5/2009 9:20 PM (GMT -7)   
Hi Vandygrad97,

I am sorry to hear of your many problems. You have quite a signature. I have heard that if you have one autoimmune disease you are at risk for more. We have had members here with more than one diagnosis. It is really not that uncommon.

Have you considered a progression therapy if you are diagnosed with MS? You may want to google the big four: betaseron, copaxone, rebif, and avonex. Good luck.
Gretchen       co-moderator MS board       diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


Denjski
Regular Member


Date Joined Aug 2008
Total Posts : 105
   Posted 3/5/2009 11:41 PM (GMT -7)   
Hello Vandy, I'm Dennis.......

I also have to deal with IBS-C, irritable bowel syndrome, constipation. The IBS has been with me since I was a child..The MS started when I was about 23.
It seemed like a good idea at the time


blondie513
New Member


Date Joined Mar 2009
Total Posts : 1
   Posted 3/6/2009 3:01 PM (GMT -7)   

Hi Vandy,

I have MS, fibromyalgia and likely Crohns or IBS.  I'm realizing that these all stem from the same foundation and have decided to detoxify my body.  I have found that by eating only organic fruits & vegetables, sprouted grains, and purified water (absolutely no prepared or grocery store food) that my constipation problems turned around, as well as my fatigue, balance, visual, parasthesia/weakness problems, and pain, have been greatly alleviated.  I have also found St.Johns Wort (3 - 300mg supplements a day) is what lifted my depression and seriously countered the pain I was experiencing, without putting any additional toxins in my body via pharmeceuticals.  I can't encourage you enough to look into detoxifying your body;  it is my opinion that I have been able to cease the onslaught of further autoimmunes developing, while at the same time possibly revearsing the damage to my various systems that began this cascading autoimmune effect.  I wish you the best!


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3550
   Posted 3/7/2009 7:07 PM (GMT -7)   
Welcome to the board blondie.  Wow I am impressed.  Where do you get your food if not at a grocery store?  You must have some good produce stands near you.  Good luck with your detox program. 

Gretchen       co-moderator MS board       diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


otto_immune
New Member


Date Joined Mar 2009
Total Posts : 2
   Posted 3/8/2009 5:59 PM (GMT -7)   
Blondie,
Thanks for the advice. Been trying almost everything except voodoo(would probably do it if it worked...lol)
The neurologist stopped counting lesions on my brain at 60. I KNOW that the only reason I'm functioning is by the Grace of God.
I'm thankful that I found this forum because sometimes I feel VERY alone. I spent many years having people close to me believing I was crazy or psyco-somatic.
Has anyone else run into that kind of treatment before diagnosis?

20yearsandcounting
Regular Member


Date Joined Jun 2008
Total Posts : 100
   Posted 3/9/2009 3:43 PM (GMT -7)   
Hello, My name is Peg and yes, I have MS & thyroiditis.  I don't know if I am with any other ones.  I have a list but, it does not list all of them. 

 
*~*We don't stop playing because we grow old, we grow old because we stop playing*~*
 
*~*Gossip SEEMS to be the staple of the human race?*~*
 
*~*Sometimes the Lord calms the storm. Some
times He lets the storm rage and calms His child.*~* 
 
 

 

 

New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, December 15, 2017 10:46 PM (GMT -7)
There are a total of 2,906,018 posts in 318,912 threads.
View Active Threads


Who's Online
This forum has 158256 registered members. Please welcome our newest member, 1success.
247 Guest(s), 5 Registered Member(s) are currently online.  Details
Oldbuddy, LymeSick 🌟, xfmlg, ExplosiveKittens, Howard3569