Questions about relapse/progression

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flutterbug
Regular Member


Date Joined Jul 2008
Total Posts : 31
   Posted 3/25/2009 8:47 AM (GMT -7)   
 
Ok, are one or two new symptoms indicative of a relapse and/or progression? For instance, I've been having many symptoms on and off for years but some symptoms such as intermittant blurred vision and slight buzzing starting from my rt. foot to my upper leg have been sticking around. The rt. foot buzzing happened about four months ago then went away. Now it's back but ever so slightly affecting my whole right foot and leg and some "Vibration" feeling on my left leg. ( I keep thinking my cell phones going off but  I've got it turned off.) It's like I'm super sensitive to vibrations in the floor or my car peddle when I'm driving.
 
Please someone explain this: If I've got no lesions now, what would indicate me possibly developing them? What constitutes an actual full-blown relapse?
 
Sorry, so many questions.... smilewinkgrin

MomiCide
New Member


Date Joined Mar 2009
Total Posts : 4
   Posted 3/25/2009 12:17 PM (GMT -7)   

Your symptoms sound very familar to me. My diagnosis is RRMS and I have had some of these symptoms you mention.

My check ups and MRI show no signs of new damage; my neurogolist explains that my visiting symptoms are to be expected.

The vibrations I experienced in my limbs were like electrical currents running through my veins. I cannot say it was painful but it was very uncomfortable. Very gentle massage helps alot. I cannot explain why but I experience nearly instant relief. Go get someone to rub your feet gently...it is totally worth it.

smilewinkgrin  The good news is that some symptoms just visit and go away. But these symptoms always leave something behind.

For instance: My right side will suddenly become very weak and uncoordinated. My handwriting will become very difficult and kinda look like a child clutched a crayon to write or I will need a cane to just walk across the room. And then...improvement! I will be able to write something that can be read and I can walk through a supermarket without knocking crap over. Although, I remain a bit clumsy and my handwriting is a slightly different than before.

I am grateful for returning functions and I very strongly recommend physical therapy. Something as simple as squeezing playdough in my hand or playing with a yo yo has been very helpful. And Pool Therapy for strength training is quick easy and fun!

Good luck and hang in there!

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3546
   Posted 3/25/2009 5:15 PM (GMT -7)   

Flutterbug,

I am sorry you are not feeling well.  Please let your doctor know of these health changes.  If you have MS, then certainly new symptoms or a significant increase in old symptoms (lasting longer than 24 hours) could constitute a flare or progression.  Anytime I flare, my neuro requests a new MRI so we can check for new lesions or see which old ones are inflamed. 

Do let your doctor know.  Feel better soon.


Gretchen       co-moderator MS board       diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


Denjski
Regular Member


Date Joined Aug 2008
Total Posts : 105
   Posted 3/29/2009 11:48 PM (GMT -7)   
Hello flutterbug...I thought I had an excerbation earlier this year but my neuro after said, after looking at a MRI, no.. after 30 years the MS has taken a toll on my brain, and things wear out...but I'm still functioning so can you by simply eating right, excerise, maybe a little yoga to stretch, and paying attention to your doctor
It seemed like a good idea at the time


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3546
   Posted 3/30/2009 6:24 AM (GMT -7)   

Thanks Dennis,

This is called brain atrophy.  It is an actual shrinking of the brain overall. It is actually measurable, that atrophy.  But the brain also deteriorates in ways not yet measurable.  My neuro explained that MS is still very poorly understood.  It seems as if your brain and spinal cord are always under mild attack or that there is a near constant inflammation going on.  This doesn't always reveal itself as new lesions but instead as a more general loss of brain function.  They think that is where you get that memory loss and other symptoms that so many of us share despite not having lesions in the same exact spot.

Dennis is correct that so much of that inflammation can be reduced with exercise and good eating.  Fruits and veggies are considered very cooling as opposed to fatty foods or simple carbohydrates.  Aerobic exercise is also very cooling to the immune system.   Getting your heart rate up for a half hour causes anti-inflammatory responses that last for several hours.  That is why many doctors say that MS patients need to exercise every single day forever.
Gretchen       co-moderator MS board       diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.

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