New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Beau2006
Regular Member


Date Joined Apr 2006
Total Posts : 388
   Posted 3/26/2009 8:06 AM (GMT -7)   
Hi there, have not been around lately so hi to everyone. I have a question about MS Hug.
 
For about 3 years, out of the blue, I will get a tightness in in my chest, my heart skips beats, I run short on breath, and the muscles on my rib cage become sore.  I have mentioned this to my doctor - and all I got basically was a Ha?  He did send me off for testing, and found that that old ticker was working just fine - mine you the day that I went everything was working like it should be....
 
So does this sound like MS Hug....it becomes worrysome when my chest hurts and I am short on breath, but if this is all part of this MS Hug thing - then Ill relax a bit.  The reason I am bringing it up now, is because I had a spell of this last night.  I took a couple pain killers, and an Ativan, and it went away after a short period of time....so as my doctor would say - ha!!
 
MS Hug???
 
Thanks
Gary

bohuck2
Regular Member


Date Joined Dec 2008
Total Posts : 196
   Posted 3/26/2009 3:12 PM (GMT -7)   
You may want to see someone like a Neurologist who is familiar with MS. Each person reacts different to MS but yours may be the MS hug. Like I said though, see a professional to know for sure. Good luck to you.
 
 
 
 
                                        Chuck the old man :>)
                                   AMWTP Training Instructor
                                          Idaho Falls, Idaho
                                  Diagnosed with PPMS May, 2006
                                   but still working at the present.         
                Tried just about everything there is for MS, including Tysabri
                               Waiting to start Cytoxin Treatments soon.


popsie
Regular Member


Date Joined Aug 2008
Total Posts : 271
   Posted 3/26/2009 7:17 PM (GMT -7)   
Beau

That MS hug sounds scary. I have stopped breathing automatically which is bad enough. I learnt to takeover breathing conciously and have not been troubled by it for the last 8 years. Thats the best thing about MS sometimes symptoms go away. Hope yours goes away soon. :-) :-)
Have had relapsing/remitting MS since 10 yrs old. Secondary/progressive since 1995. Baclofen pump since 2008.
Row, row, row your boat gently down the stream
Merrily , merrily, merrily, life is but a dream


Beau2006
Regular Member


Date Joined Apr 2006
Total Posts : 388
   Posted 3/27/2009 7:19 AM (GMT -7)   

Hi there and good morning - thanks to both of you for your replies.  I don't get it that often,but whenit does hit, it sure does make u sit back and wonder what the heck is going on.

Gary


alwayshopefull
New Member


Date Joined Mar 2009
Total Posts : 1
   Posted 3/28/2009 9:19 AM (GMT -7)   
Hi new guy here,
I have experienced the Hug myself many times and yes very painfull and scary. I was diagnosed 2 years ago but been experiencing the symptoms for 9 years. Always put it off as a pinched nerv or something.

EBullins
Regular Member


Date Joined Feb 2009
Total Posts : 63
   Posted 3/28/2009 10:03 AM (GMT -7)   
Hi Gary,
I have had MS for 18 years and just started this past year with the MS hug. It can either be in my chest or in my ribs with or without pain. Very scary but eases if I try to relax into it. I notice it comes if I get hot, stressed or for no apparent reason at all. It can really slam you and be very unpleasant. Good old fashioned relaxation techniques is all I have to offer but they really help me!!! Good luck to ya!!!

Peace,
Elizabeth
~~~Know Peace Know Power~~~
 
***Let emotions subside then decide***


LymeFrustration
Regular Member


Date Joined Oct 2007
Total Posts : 61
   Posted 4/6/2009 7:15 AM (GMT -7)   
I am confused about the MS hugs. First, I have diagnoses of MS, Lyme Disease, Hashimoto's Disease and Hypothyroidism. 
 
Anyway, I was on IV Rocephin and Mepron for the Lyme Disease.  On my second week of the Mepron, I had what I believe was an "MS hug."  I thought at the time I was having a gallbladder attack (even though I had never had one before).  It came on totally out of the blue when I was finishing a conversation with a friend and had just hung up the phone.  I immediately fell to the floor due to the pain and I had extreme difficulty breathing.  I also lost use of my arms, right significantly more than left, although did not lose use completely.  The pain was around my entire chest and felt like it was emanating from my sternum (bone).  My daughter drove me to the ER, but once I got there, I felt like it was subsiding and did not actually check in.  (Episode lasted about 20 minutes.)  However, the next evening, almost the exact time, the same thing happened again.  I was at the mall and could barely make it to my car.  I drove myself to the ER, which was only about 5 minutes away, but I could not even use my arms to hang on to the steering wheel.  I had to put my hands in my lap and steer from the bottom of the wheel.  I did manage to hold my cell phone to my ear for just a short period to call my daughter, but I could not stay on the line with her because I could not hold it up to my ear any longer.  Again, the pain was entirely around my chest with extreme difficulty breathing.
 
In my gut, I felt the Mepron was aggravating something in my body, and I discontinued it after the second attack.  I have not had another attack since (it's been almost a year). 
 
I read the recent posts about Montel Williams being on Oprah (which I did see), and I have to say, I was skimming his book in Barnes & Noble, and in the first chapter he describes the MS hug, and it was an exact description of what I had experienced.  He describes it as if a boa constrictor were wrapped entirely around your chest/midsection and squeezing you as tightly as it could.  That is exactly how I felt.  In the ER they asked what my pain was on a scale of 1-10.  I replied the first time it was a 15 and the second episode a 10.  I was crying so hard from the pain they said I was hyperventilating.  (I personally believe the "hyperventilating", i.e., difficulty breathing is what caused me to sob hysterically, not the other way around.)
 
I know this is a long post, but these episodes still bother me (psychologically) almost a year later.  I think they were MS hugs, but not 100% sure, as people on this site talk about the hugs lasting for very long periods of time.  Maybe there's different degrees of this happening???  I am concerned that they can come on so very fast and so out of the blue that it makes me anxious to go places sometimes.
 
One of the things that Montel Williams said on Oprah is that the #1 cause of MS deaths is suffocation and #2 suicide.  Is this correct?  What does he actually mean by "suffocation,"--is he referring to the MS hugs?  Can you die from them?  I definintely felt like I was dying both times I experienced this.
 
 

popsie
Regular Member


Date Joined Aug 2008
Total Posts : 271
   Posted 4/6/2009 7:54 PM (GMT -7)   
I have not had a MS Hug which sounds really really nasty. But I have stopped breathing automatically and just had to remember to breathe conciously. I had it off and on for about a year. Another MS er I know who has had it used to say she was afraid of having it in the night and dying. I have also had such unbearable pain from spasticity that was, like you say beyond 10/10 more like 15, and had me crying out and sobbing hopelessly at night. What you had sounded a lot like that. I definitely feel you did the right thing in following you intuition/gut feel. You know best what your experience is and don't let any doctor say they know better, including neurologists. My neuro has told me that my symptom is not MS but I find them listed on the MS society website. My mother was told her whole life she was a hypochondriac and was only diagnosed with MS in her 80's.
Have had relapsing/remitting MS since 10 yrs old. Secondary/progressive since 1995. Baclofen pump since 2008.
Row, row, row your boat gently down the stream
Merrily , merrily, merrily, life is but a dream

New Topic Post Reply Printable Version
Forum Information
Currently it is Monday, December 11, 2017 4:09 PM (GMT -7)
There are a total of 2,904,139 posts in 318,725 threads.
View Active Threads


Who's Online
This forum has 158122 registered members. Please welcome our newest member, hollyylouissee.
382 Guest(s), 9 Registered Member(s) are currently online.  Details
moosie, Serenity Now, FoxRun, Lymess, Mark FW, Mergirl, gumby44, FamilyGuy, lapilot