A year and getting worse. Is my new doc a quack as well?

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Regular Member

Date Joined Sep 2008
Total Posts : 27
   Posted 4/2/2009 7:29 AM (GMT -7)   
I have never been on this board before, but my new doc says i have no reason to see a neurologist. I have pain all over my body and numbness occasionally. Now I seem to be having migraine symptoms and I have muscle weakness. It had beena year. I switched docs and got a pain med that sounds like it will just kill me quicker. I know you aren't docs, but this seems ridiculous. I also have arthritic symptoms memory problems and stomach issues. So far the only thing they investigated was my stomach and its been a little over a year. My symptoms come and go. I get breaks where I feel pretty normal and then when it comes back it seems even worse. Does this really not need a neurologist? I am fed up. I emailed a local clinic asking to refer myself. I don't want to die and am scared. I feel like I am somehow managing to get every quack in town. I really wish I knew what to do. I amdiagnosed as schizo affective. because of my mental health diagnoses most appointments i am dismissed and told i should just see a therapist. Last time i was in i asked the doc what she would do if my leg was cut off and i was bleeding. I said would you send me to a therapist? she said of course not. I would attend to your leg. I told her okay then attend to my physical problems and quit bringing up mental health. Test me. send me to a neurologist please. Then she says i have no reason to be sent. The previous doctor decided without testing it was in my head and never documented anything but my stomach pain. I am so frustrated. I also have developed asthma. they think i have ibs. my stomach empties too slow. I have gallstones. I guess i also have boils as well. Some stupid doc told me they were just bad pimples, no wonder i haven't got rid of them. my mom said they were probably boils and my hubby agrees. I don't know if this is ms. I have been on the fibromyalgia board as well. My mom supposively has fibro which means it is possible i do too, but i don't know. I just want to know what is wrong.
People will tell me not to worry about it. some nights i fear i will not be alive in the morning. I am scared. People think a diagnoses doesn't matter. To me it does. Without a diagnosis it is like fighting a monster in a dark with weapons that might just be making it stronger.

Regular Member

Date Joined Nov 2007
Total Posts : 23
   Posted 4/2/2009 9:17 AM (GMT -7)   
I know how you feel about docs not taking you seriously when you are diagnosed with a mental disorder. I have bipolar and every time I go to the doc, my symptoms are always blamed on that.

But,if I were you, I would ask him to do blood work for arthritic conditions. Have him do and ANA, RA, Sed Rate, and a CRP. Your symptoms sound arthritic to me.

Good luck! Let us know how it goes.
Mao periculosam libertatem quam quietam servitutem.
("Rather a dangerous liberty than a peaceful servitude.")

Regular Member

Date Joined Mar 2009
Total Posts : 90
   Posted 4/2/2009 1:17 PM (GMT -7)   
First, I just want to tell you to try not to worry so much. I know that you are going through a very rough time right now, many of the people on this board had to wait several years to get the proper diagnosis, and many of us have had our symptoms dismissed as stress-related or 'all in our head.' What you are going through is very difficult, but you are not alone, there are plenty of people here who can sympathize with you. It is scary to know that you are sick and not have a diagnosis, but just remember that even if you do have something serious like MS or fibromyalgia, these illnesses are not likely to kill you anytime soon. 
My advice to you is to be persistent with your visits to the doctor, and keep looking around until you find someone who is willing to take you seriously. At the same time, try to be patient with the doctors. A lot of these illnesses are difficult to diagnose, and some can only be diagnosed after all other possibilities are ruled out. This may mean playing along and letting them run tests/try treatments until they can rule everything out.
You may want to try to get an appointment with a rheumotologist first instead of a neuro. Rheumatoid arthritis or fibromyalgia could be the cause of your symptoms, in which case a rheumotologist would be more knowledgable than a neurologist. Also, just FYI-IBS is often linked to autoimmune disorders; my mother has fibromyalgia and IBS, and I have MS and IBS. 
Good luck. I hope you get things figured out soon.

Be joyful in hope, patient in affliction, faithful in prayer (Romans 12:12).

Forum Moderator

Date Joined Jan 2007
Total Posts : 3552
   Posted 4/2/2009 6:20 PM (GMT -7)   
I am sorry you are having such a hard time getting answers.  That is very frustrating.  You are right in that we cannot diagnose you here.  The problem with MS is that is shares so many symptoms with other diseases.  You have some that might possibly be MS symptoms, but you also have some that I have never heard of for MS.  Please check out the link I have posted below.  It talks all about MS and the diagnositic testing that accompanies it.  Good luck.
Gretchen       co-moderator MS board       diagnosed with MS July 2006
I have no lesions on my soul and so I will live with no limits.

Regular Member

Date Joined Sep 2008
Total Posts : 27
   Posted 4/2/2009 8:34 PM (GMT -7)   
Hi everyone,
I guess my newer doc isn't as bad as the others. I am getting in for an MRI. I am excited and scared at the same time. I do have a lot of symptoms and it is possible i have more than one thing going on. I did find out I have boils. I was tested for staph erlier this year and they said I didn't have it, but I have had these boils for several years. A bad doctor told me they were pimples so i ignored them and even tried to pop a couple. I guess that was bad because it can spread the infection. I am sorry I was in such a negative mood. I try to stay positive, but I get scared sometimes. I did not list all my symptoms. i finally made a word document with them because i would always forget something. it is over a page long. So i am in a better mood today. I have wanted an mri for awhile now. They did test me for one type of arthritis through blood work awhile ago.i was normal as usual. our family has weird bodies. my mom is allergic to TB tests so even though she doesn't have it she comes up positive. well i need to go. thanks for listening.:)

Regular Member

Date Joined Jan 2009
Total Posts : 498
   Posted 4/3/2009 3:47 AM (GMT -7)   
Hi 3eyesofwisdom

Please keep us posted about the MRI result. You will be in our thoughts and prayers. Take care and do not worry too much. You will be fine. Our good wishes are with you at this hour of crisis.
45 years Male Attorney
Diagnosed UC October 1989
Had two stage J Pouch Surgery Nov 2005 Take Down March 2006
Complications after surgery - Incisional Hernia and Ano Fistulas
"Faith is the bird that sings when the dawn is still dark."
"There are only two ways to live your life. One is as though nothing is a miracle. The other is as though everything is a miracl: Albert Einstein
"What you are aware of you are in control of; what you are not aware of is in control of you."

tommy one tooth
New Member

Date Joined Jul 2009
Total Posts : 4
   Posted 7/13/2009 10:39 AM (GMT -7)   
I have ms and you have alot of the symptons I do about the weakness and the numbness. My worst is the fatigue and the heat sensitivity. Do yourself a favor and find a neurologist.  After all it is your body and you have a right to find out what is wrong with you.  Some doctors think they are God just because they wear the white coat.  I had one doctor tell me I was just depressed.  I found out I had MS when I went into emergency thinking I was having a heart attack.  Turns out it wasn't that.  A neurologist saw me and had tests done.  I found out I had MS.  I didn't like this Doctor because he was always in a hurry to leave the room at my appointments.  I went to an MS seminar and listened to the doctor there.  I made an appointment with him.  Lo and behold, I found a good doctor.  He won't leave the room until I have all my questions answered.  Get this!  He even listens to me.  The other doctor wanted only to see me once a year.  This one wants to see me every 3 to 6 months. 
Hang in there  it is really hard I know.  We don't have a choice now.  Live one day at a time.
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