symptom questions

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mc21
New Member


Date Joined Apr 2009
Total Posts : 6
   Posted 4/6/2009 10:54 AM (GMT -7)   
 Hi, I was wondering if any of you when you say your symptoms come and go do you mean for a while?  I have had unbalanced feel like I am going to fall over than it goes away sometimes for a week than it is back other times for a few hours than it is back.
I also have had sever leg pain almost like my muscles are so tight it hurts to walk  this is relieved at times with rest but with in a hour it is back sometimes it doesn't go away legs feel very weak.  My arms are doing the same thing now I cant hardly type for the pain up my arms.  I was just wondering when it is stated that symptoms come and go are any of you relieved by rest and how long in between attacks do you not have symptoms.  I have had 1 MRI of brain and spine they said it was clear except on spine he said I had a spur and the area was deteriorating wouldn't explain any more than that and is sending me on to different neurologist.  I have had this reappearing tightening between my shoulder blades and it hurts so bad that I can hardly breath.  MY sister in-law said I should go to a chiropractor that I must have things out of place I do not feel that is the answer but all of my test so far are coming out fine but for almost 6 months I have had many different symptoms and the back has been for a year but it goes away for a month or 2 and than it is back sometimes for hours I also have had on and off diarrhea than constipation for a year.  I am to the point now my vertigo/unbalanced I do not feel like I can drive when I do I feel like I am a drunk driver so I dont any more.
Please help any information would be very helpful.
Thank you for listening to me

 

bohuck2
Regular Member


Date Joined Dec 2008
Total Posts : 196
   Posted 4/10/2009 12:23 PM (GMT -7)   
As you probably know by now there are 4 different types of MS. Now I'm not a doctor nor do I pretend to be, but if I were you I would go see a neurologist and tell him what you are saying here. If he doesn't want to do anything to help you then go see another one. It took me 5 different doctors before I finally got one that would actually listen to what I was saying. Good luck to you.
 

 
 
 
 
                                        Chuck the old man :>)
                                   AMWTP Training Instructor
                                          Idaho Falls, Idaho
                                  Diagnosed with PPMS May, 2006
                                   but still working at the present.         
                Tried just about everything there is for MS, including Tysabri
                               Just recently had Treatments of Cytoxin
                                        Liked to kicked my butt!


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3550
   Posted 4/10/2009 7:30 PM (GMT -7)   
By all means see as many doctors as it takes to get some help and some answers......just remember that the answer may not be MS.

Gretchen       co-moderator MS board       diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


rm102691
Regular Member


Date Joined May 2009
Total Posts : 39
   Posted 5/12/2009 4:06 PM (GMT -7)   
sorry you are going thru this too.....i am having leg pain/calf tightness and i feel like i am going crazy....i also have tingling in my legs/face also...

continue harrassing your doc if you need to, i plan on it too, and i'm getting my 2nd mri in a year...first one was normal.....what are the 4 different kinds of ms?? i've never heard of 4 diff kinds?

and if you are over 40 can you be diagnosed with ms. research says between 20-40, and also; is MS malignant? this is what it says for people over 40 on the ms site...what does this mean?

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3550
   Posted 5/12/2009 4:42 PM (GMT -7)   
rm, there are several types of MS.  There is a rare form that is called malignant.  It is very progressive and typically does not respond to treatment.  It is slightly more common to have progressive MS if you are diagnosed later in life (after 40).  It does not mean that everyone diagnosed after the age of 40 has this type of MS however.  I was diagnosed at 43 and I have had quite slow progression so far (knock on wood). 

Gretchen       co-moderator MS board       diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


rm102691
Regular Member


Date Joined May 2009
Total Posts : 39
   Posted 5/13/2009 3:31 AM (GMT -7)   
what would be the symptoms of that type of MS...? now i'm getting more nervous...
and i'm still confused about symptoms that "come and go".....can they tingling be on one side of the head on one day, and then the other side the next day, or be in 2 different spots on your head at the same time on another day?
this is pure hell waiting for results of an mri - i am not sure i want to even show up for that appt...i wont be able to handle it...esp with me being 46...

and if the docs are ruling out other diseases on the mri and didn't mention ms, do they still look for lesions for ms?
sorry to repeat myself, i don't know why i do it, i just do...its the worrywort in me !

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3550
   Posted 5/13/2009 6:15 AM (GMT -7)   
Ok you have some serious health anxiety.  Please know that severe anxiety can cause real and disturbing symptoms in and of itself!!  You need to get to a doctor now and let that person know what you are experiencing.  Malignant MS is extremely rare!  It progresses very quickly.  There is NO coming and going of symptoms.  You get new symptoms but you keep the old.  I am just about done feeding into this thread.  You need to see a doctor for your anxiety.  Please let them know you are terrified of malignant MS.

Gretchen       co-moderator MS board       diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


rm102691
Regular Member


Date Joined May 2009
Total Posts : 39
   Posted 5/13/2009 6:39 AM (GMT -7)   
i realize that i have serious health anxiety.....
sorry, didn't mean to make anyone upset.... i didn't mean to "feed" into this thread...i am seriously worried, but i will leave you (and everyone else) alone now......good luck to you all.....

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3550
   Posted 5/13/2009 12:36 PM (GMT -7)   
I don't mean to sounds unsympathetic.  You are clearly very worried and sick.  Anxiety is a real and potentially debilitating disease!  Go back and re-read some of your posts here.  You repeat questions, you posted twice and couldn't wait for someone to answer.  You are practically hysterical!  I am worried for you!  Do you have a doctor you can talk to about these anxieties?  You may have other health issues but you might just need to treat the anxiety for you to feel better.
 
Good luck to you as well. 
Gretchen       co-moderator MS board       diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


rm102691
Regular Member


Date Joined May 2009
Total Posts : 39
   Posted 5/13/2009 12:55 PM (GMT -7)   
yes, i have a habit of repeating my questions - i am not a very patient person, as you well know. yes, i am worried; yes i am having an mri on friday - yes, i am going to talk with a counselor next week....i want to help myself - i am so sick and tired (literally) of worrying all the time. i hate this about myself - and like i said before; i'm sorry you were a bit frustrated with me..take care

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3550
   Posted 5/13/2009 1:56 PM (GMT -7)   
No worries.  I could be more patient.  My husband has generalized anxiety.  I have seen him suffer so much from this.  I do understand that it is an awful thing to live with.  I am sorry I came off a bit short with you.  I do want you to feel better.  Whatever your health issues turn out to be, you are welcome to post here. 
 
Remember that I am not a doctor, but I don't think you have MS nor malignant MS.  I think you have something going on and I do hope you get some answers and treatment real soon.
Gretchen       co-moderator MS board       diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


rm102691
Regular Member


Date Joined May 2009
Total Posts : 39
   Posted 5/13/2009 2:56 PM (GMT -7)   
thank you, gretchen. i appreciate that.
this is something i wouldn't wish on my own enemy...its physically and emotionally exhausting - my well wishes for your husband, and for you also !
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