Posted 4/10/2009 5:03 PM (GMT -6)
i have been newly diagnosed with ms after three years of classic symptoms. i originally had a neurologist who diagnosed me with "generalized seizure disorder" from an eeg after one episode of no responsiveness and eyes deviated to the left for about 10-15 seconds. i saw this doctor multiple times complaining of all of the classic symptoms of ms. he just ran new eeg's and changed my meds and increased/decreased them. i would keep going back and tell him that i just didn't feel right and he would examine me by having me walk across the room and put my palms face up/down. it got so bad a couple of times that i actually could not get out of bed and worried my husband something terrible. we recently moved and i finally changed family doctors and was so bad at the time that i couldn't even sit up and had vision, eye movement problems, dizziness, headaches, balance problems, cognitive thinking problems, memory problems, tingling in my legs etc. she sent me to a new neurologist and he immediately sent me for an mri and by the time we got in the front door afterwards he was calling saying that i had ms, though he said he had suspected this from the first visit. he then scheduled me for a spinal tap and again this was conclusive. i had a three day course of iv steroids, oral steroid taper, and just started betaseron this week. i am feeling much better, but still have memory problems short term and still feel a little unstable and have other symptoms once in a while. i see the doctor again in a week or so and am anxious to talk to him more about my symptoms and treatment.
i was actually relieved when i got the diagnosis, i knew something had been very wrong for a few years, but am very frustrated that my old neurologist did not even suspect ms. i don't know what my chances would be if i were to legally confront him, but this may have caused more permanent damage in the course of these past three years. i am getting along pretty well, other than my horrible fear of needles, which i will have to overcome, it helps with the auto-injector, and my husband is a paramedic/fire captain so can help out too. by now i feel like a pincushion anyway, so will have to get used to all of this for the long haul.
thanks for listening and looking forward to your responses.