so frustrated about mid-diagnosis for three years...

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New Member

Date Joined Apr 2009
Total Posts : 2
   Posted 4/10/2009 6:03 PM (GMT -6)   
i have been newly diagnosed with ms after three years of classic symptoms. i originally had a neurologist who diagnosed me with "generalized seizure disorder" from an eeg after one episode of no responsiveness and eyes deviated to the left for about 10-15 seconds. i saw this doctor multiple times complaining of all of the classic symptoms of ms. he just ran new eeg's and changed my meds and increased/decreased them. i would keep going back and tell him that i just didn't feel right and he would examine me by having me walk across the room and put my palms face up/down. it got so bad a couple of times that i actually could not get out of bed and worried my husband something terrible. we recently moved and i finally changed family doctors and was so bad at the time that i couldn't even sit up and had vision, eye movement problems, dizziness, headaches, balance problems, cognitive thinking problems, memory problems, tingling in my legs etc. she sent me to a new neurologist and he immediately sent me for an mri and by the time we got in the front door afterwards he was calling saying that i had ms, though he said he had suspected this from the first visit. he then scheduled me for a spinal tap and again this was conclusive. i had a three day course of iv steroids, oral steroid taper, and just started betaseron this week. i am feeling much better, but still have memory problems short term and still feel a little unstable and have other symptoms once in a while. i see the doctor again in a week or so and am anxious to talk to him more about my symptoms and treatment.

i was actually relieved when i got the diagnosis, i knew something had been very wrong for a few years, but am very frustrated that my old neurologist did not even suspect ms. i don't know what my chances would be if i were to legally confront him, but this may have caused more permanent damage in the course of these past three years. i am getting along pretty well, other than my horrible fear of needles, which i will have to overcome, it helps with the auto-injector, and my husband is a paramedic/fire captain so can help out too. by now i feel like a pincushion anyway, so will have to get used to all of this for the long haul.

thanks for listening and looking forward to your responses.

Veteran Member

Date Joined Mar 2006
Total Posts : 2146
   Posted 4/10/2009 7:09 PM (GMT -6)   
Hey Socalgal

Welcome to the board! I'm so sorry for u'r recent diagnosis, but glad u finally got answers. Sometimes docs can get into a 'rut' and seem to miss things or even dismiss things. It does happen even tho for us the symptoms are in their faces. The good thing is that u've found a good neuro and are on the road to feeling better!

I hope u'll find the support u may be looking for here. This is a great site with many wonderful people! We have live chat on Monday's of each week beginning at 6:00pm CST. We'll post a reminder each week to let u know the time for u'r zone. I hope u'll be able to join us. Again, welcome to the board!
Co-Moderator, MS Forum
*~*Sometimes the Lord calms the storm. Sometimes He lets the storm rage and calms His child.*~*
Things that make u go hummmm......
*I wonder how much deeper the ocean would be without sponges.*
*One day without sunshine is*

New Member

Date Joined Apr 2009
Total Posts : 2
   Posted 4/10/2009 7:12 PM (GMT -6)   
thank you rhonda, looking forward to joining in the discussions. have a great Easter holiday everyone!
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