L'Hermittes ???

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mystery reader
Regular Member

Date Joined Jun 2007
Total Posts : 257
   Posted 4/15/2009 5:32 PM (GMT -6)   
Sorry, I haven't been around much.
I have been dealing with some major pain and spasms in my back.  My back has been aching for several months off and on, but now it is 24/7, with frequent spasms.  When I lower my chin to my neck, I am not experiencing a shock sensation, but I do feel sharp spasms (gasp) in my left, lower back.  (So I quit trying that  rolleyes  ) So I wonder if what I am experiencing is L'hermittes.  And if so, does it go away?  Please tell me yes.
I went to my pcp and she prescribed soma (muscle relaxant instead of baclofen) and vicodin.  Well, I took those for two days, but I was way too "loopy" when I was on them.  So I went back to my baclofen today, even though I am not sure if it has ever helped. I also took some advil even though I have had problems with anti -- inflammatories in the past (ulcers). I was able to make an appointment to see my regular neuro next Thursday.  The nurse did say that if the soma did not work, we could consider upping my baclofen.  So, I may try taking an extra one tonight.
I missed school for the past two days, but made it through classes today.
Basically, I am just an umcomfortable mess right now. cry
Barb/mystery reader
Diagnosed April 2007
Started betaseron --  May 2007 -- experienced allergic reactions after 2 weeks
Started copaxone -- June 2007 -- stopped after 4 1/2 months;experienced  severe 5 IPIR's
Started tysabri -- December 2007
Stopped tysabri -- April 2008 (developed antibodies/severe reactions)

Forum Moderator

Date Joined Jan 2007
Total Posts : 3567
   Posted 4/15/2009 8:00 PM (GMT -6)   

Wow Barb!

This sounds miserable!  I have had some upper back and neck spasticity but not near to the level you describe.  I have also had L'Hermittes.  It was one of my presenting symptoms that got me diagnosed so quickly.  It is painful for some the L'Hermittes, but it was not painful for me.  I am not a doctor but I am thinking that what you are experiencing is not L'Hermittes. What you are describing sounds like muscle spasms.   L'Hermittes is a signal problem on the spinal cord itself.  My L'Hermittes went away after about 3 months.  For some, if the damage to the spine is severe, it can be permanent.

I hope you get some relief soon.  I have taken soma before and I agree with you, it is too much to really function on.  It just knocks me out.  ZZZZZZZZZZZZZZZZZZZZZ.

Gretchen       co-moderator MS board       diagnosed with MS July 2006
I have no lesions on my soul and so I will live with no limits.

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