starting copaxone.....again

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guppy
New Member


Date Joined Feb 2009
Total Posts : 5
   Posted 4/16/2009 11:25 AM (GMT -7)   
It has been 7 years since I have used copaxone and I will be starting it again next week. I was taking ivig every month, but medicare stopped paying it 100% like they used too and the 20% copay was more than I could afford. I was able to get assistance with copaxone, so here I go again. I remember when I first took it you had to mix your own solution, but now I have noticed that it comes in a prefilled syringe. Are there any other new side effects, pointers, or good advice for me from anyone? I remember the knots and welps on my skin. I was just checking to see if there was anything else. Also does anyone have good stories about how copaxone has helped them. Thanks a bunch! :)
 
Michelle

bohuck2
Regular Member


Date Joined Dec 2008
Total Posts : 196
   Posted 4/16/2009 2:58 PM (GMT -7)   
Michelle,
I was on Copaxone just for a short while until I was diagnosed with PPMS. I used the pre-filled syringe and the autoinector, which I found nice to use, just don't put the setting to go to deep or it will go into the muscle which hurts like a son-of-a-gun! Good luck to you, I think you will be fine.
 
 
 
 
                                        Chuck the old man :>)
                                   AMWTP Training Instructor
                                          Idaho Falls, Idaho
                                  Diagnosed with PPMS May, 2006
                                   but still working at the present.         
                Tried just about everything there is for MS, including Tysabri
                               Just recently had Treatments of Cytoxin
                                        Liked to kicked my butt!


Beau2006
Regular Member


Date Joined Apr 2006
Total Posts : 388
   Posted 4/19/2009 10:21 AM (GMT -7)   

 

Hi Michelle, I copied my post from another post that I did this morning...

Gary

-------------------------------------------------------------------------------------------------------------------------------------------------------------------

Hi there and good morning.  I have been on Copaxone for 16 months. I have had great success with this drug, but everyone will of course have various results.  With me, now at 16 months, my symptoms are much less noticeable then they were before. about the only time that I do notice my symptoms - is when I become fatigued, and when I over heat.

Copaxone takes longer for it to kick in then the other therapies, but there really are no side effects, ie...upset stomach, flu like symptoms....however some have experienced some anxiety right after injection, heart palps, etc....but I have not yet experienced this. The only thing that I do get is site reactions, ie...lumps, bumps, redness, etc, but they do go away soon.

I use both the auto injector, for behind my arms, but for the other locations I self inject. The reason is that I find that I just don't seem to do it correctly all the time with the auto injector, causing more pain then normal....and with the injector, I tend to inject too deep and hit a muscle, which is not pleasant afterwards....however again this is likely due to me being too rammy, and not taking the time to do it properly.

As mentioned before, copaxone takes time to see results.....I started in December of 2007, and it was not until fall of 2008 that I really did start to see results.  Now 6 months later, I feel pretty darn good. My last MRI seen an improvement in the number of lesions that I have, so this is a good thing.

Secret to some of my success is not missing shots. I have not missed one since I started...my neurologist agreed that this is all part of the success of this drug.  He told me that he has one patient that is on Copaxone who claims that it is not working for her - however in her next breath, said that she went on holidays for 4 weeks, and did not take the Copaxone as it was too much of a hassle...Mmmmm?

Remember that there is a wonderful support group that comes with Copaxone, called Shared Solutions. I have an assigned case worker who contacts me every month to see how I am doing, and to answer any questions that I might have. They also send out publications and readable material, that has been very informative about Copaxone and MS in general.  You don't have to worry about how to contact them upon treatment, they will contact you.

Copaxone has been around now for 10 years....so with that, there is lots of data and results now available for reading. Now on a generalized survey and test results.....one of which I found to be quite interesting and encouraging....a recent ten year study that I read indicated 92 percent of people with RRMS who remained on Copaxone were still walking without assistance even though they had the disease for an average of 15 years. After the 10 years of treatment, no significant changes were seen in the test group.  Now of course this does not apply for everyone, as everyone will react differently to the treament, but having said that, these are pretty positive results, and for me, very encouraging. As for me, I have not seen any decline since I started Copaxone, in fact the very opposite, I have noticed a markable improvement.  Remember too, that a good positive attitude, together with a good diet and exersise is essential for this whole package to work.

So I hope that I have been able to answer some of your questions, and if u have more, fire away. More than glad to help

Have a nice day,

Gary

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guppy
New Member


Date Joined Feb 2009
Total Posts : 5
   Posted 4/21/2009 10:56 AM (GMT -7)   

Thanks for the help, especially you Gary. I will be starting Thursday and hoping that I do not experience any negative side effects. I will keep everyone posted.

 

Michelle


Beau2006
Regular Member


Date Joined Apr 2006
Total Posts : 388
   Posted 4/24/2009 9:01 AM (GMT -7)   

Hi there let us know when you start your injections again.....if you have any problems or concerns or just need toask something about the injections, I and everyone else will be glad to help you...

Gary

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