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rayofsunshine
New Member


Date Joined Apr 2009
Total Posts : 2
   Posted 4/17/2009 9:38 AM (GMT -7)   
Hey yall,
I work a lot! I am needing a little bit of help with the whole fatigue thing. I am taking Vitamin D, Acetyl-L-Carnitine, and fish oil. Is anyone taking any kind of supplement for energy?

Motown John
Regular Member


Date Joined Jun 2005
Total Posts : 475
   Posted 4/17/2009 2:03 PM (GMT -7)   
Friday p.m.
 
Good evening, Sunshine:
 
As discussed with this group, and in many other MS discussions, MS fatigue is THE most all encompassing MS symtom.
 
Right everyone?  And noone can understand the depths of our fatigue, unless you are another MS patient.
 
It is not a stayed up too late...got up too early kinda fatigue...
 
Even after a full nights sleep...it is witth us....
 
My neuro prescribed Provigil for me....it sorta helps.....sorta....
 
I am sure everyone will agree....Right everybody?
 
John redface redface
DX'ed June 21st, 1987
 


Motown John
Regular Member


Date Joined Jun 2005
Total Posts : 475
   Posted 4/17/2009 2:07 PM (GMT -7)   
...and...I take a full series of supluments...every morning...including a fish oil in the a.m.    and p.m. after dinner...John
DX'ed June 21st, 1987
 


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3550
   Posted 4/17/2009 8:24 PM (GMT -7)   

Hi rayofsunshine,

I have not had any success with supplements.  I tried the acetyl-L-carnatine and the only effect I saw was that it depleted my pocket book.  I take vit d3, and many other supplements.  The only thing that has helped me is adderall.  I know that provigil is also popular.  Exercise helps as well.  If I don't keep up with my exercise I really feel it. 

Are you only considering supplements? 

 


Gretchen       co-moderator MS board       diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


Beau2006
Regular Member


Date Joined Apr 2006
Total Posts : 388
   Posted 4/19/2009 8:50 AM (GMT -7)   

Hi there, the dreadful fatigue......between this and heat sensativity, I have to watch it.

If you are able to, exersise will help to eliminate some of the fatigue, and also helps with spasticity. Also if you are heat sensative, and become too warm, and this brings on symptoms, one of the symptoms of becoming too warm is fatigue. 

Funny thing with me, even though i am heat sensative, I find at times that I do not know that I am too warm, until all of a sudden, symptoms begin to appear, including the fatigue - crazy thing.  It was just on Friday I started to feel kinda funny in the head, and started to get that fatigue feeling, when someone came into my office and said to me that it was really warm in my office???? Knowing that I have MS and heat bothers me, also said to me, "this can't be good for you"  so I went outside for a bit, went for a walk in the cool breeze and everything got back to normal for me..

Do exersise and watch that you do not get too warm

Have a nice day

Gary


popsie
Regular Member


Date Joined Aug 2008
Total Posts : 271
   Posted 4/25/2009 12:57 AM (GMT -7)   
Sunshine,

I agree with Beau. I used to have that dreadful fatigue but not anymore though I have a lot of other symptoms. I seemed to lose the fatigue when I tried to eat right and with no junk & also stopped drinking tap water which has fluoride in it - I am very allergic to fluoride & I have read it is very toxic. But I really do not know for sure if these helped.
Have had relapsing/remitting MS since 10 yrs old. Secondary/progressive since 1995. Baclofen pump since 2008.
Row, row, row your boat gently down the stream
Merrily , merrily, merrily, life is but a dream

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