It seems the left side is more affected

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wake_up_in_the_rain
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Date Joined Apr 2009
Total Posts : 8
   Posted 4/23/2009 2:28 PM (GMT -6)   
Is this true with a lot a people with MS? I have only had optic neuritis in my left eye twice and since my second relapse the left side of my body seems weaker than my right...reading some of the posts it seems that a lot of people have trouble with certain parts on the left side. Just wondering... rolleyes

wake_up_in_the_rain
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Date Joined Apr 2009
Total Posts : 8
   Posted 4/27/2009 1:05 AM (GMT -6)   
when I have had ON I went fully blind, the best way I can explain it is to go outside and look directly at the sun for a long period of time and that blue color is all I saw and nothing else. I have had it twice and both times I have lost a little of my color vision, I was told I would never get it back. So out of my left eye colors look very very dull. I get tingling and numbness in my arms, hands, legs and feet, some days I feel so stiff that I can't even move. I have lost some of my reading comprehension due to longer processing time and I also have memory loss. Recently I have been having migraines almost on a daily basis it feels deep in my brain behind my left eye. my legs have also been giving out on me a lot when I have been walking or driving or sitting for long periods of time. I also have temperature control problems, I am either extremely hot or freezing and there is no happy medium most of the time. and at night I get twitches in my arms and legs and sometimes in my back that will not stop unless I take the muscle relaxers. Like I said everything is worse on my left side than on my right even though it is my whole body that hurts or gets stiff or anything else....what about you?

Post Edited (wake_up_in_the_rain) : 4/27/2009 12:08:27 AM (GMT-6)


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3571
   Posted 4/27/2009 7:35 AM (GMT -6)   
Smily,
 
Sleep disorders are very common in MS.  You should talk to your doctor about this.  It is crazy making for me to not get sleep!!!  Good luck!
Gretchen       co-moderator MS board       diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


wake_up_in_the_rain
New Member


Date Joined Apr 2009
Total Posts : 8
   Posted 4/27/2009 2:29 PM (GMT -6)   
I am actually going back to my Dr. in 2 weeks, I am starting to get what seems like insomnia even though I am deathly tired I still cannot sleep. I have always had this but it seems lately it is getting much worse. My bladder control reminds me of when I was pregnant, I have to "pee" every 10 minutes it felt like. Thanks Smily, it is really great to talk to someone who has the same things I do. I get a lot of people who just don't understand... smilewinkgrin

becky723
Regular Member


Date Joined Feb 2009
Total Posts : 31
   Posted 4/27/2009 8:16 PM (GMT -6)   
i'm not sure where i belong. i was told i have ms and lyme disease, but i was telling my sister i feel like i'm having a very slow stroke, because everything seems to be happening on my left side.

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3571
   Posted 4/27/2009 10:37 PM (GMT -6)   
Becky,
 
This is rough stuff.  I am very sorry.  You have been diagnosed with two diseases that need polar opposite treatments.  MS needs immuno-modulating, and lyme needs major immune boosting.  Which one are you treating? 
 
Just to share, my MS was first missdiagnosed as a stroke.  I know that feeling.  I don't have so much of a left sided deal but I have a couple symptoms of stroke.  It is creepy really. 
 
Good luck.  Feel free to post and ask questions. You belong wherever you want to be....you are welcome here.
Gretchen       co-moderator MS board       diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


popsie
Regular Member


Date Joined Aug 2008
Total Posts : 271
   Posted 4/29/2009 7:44 PM (GMT -6)   
Hey Smily & wake-up-in- the-rain,

I have MS on left side but as the neuros delight in telling me my right is affected too though is still much stronger.

My mother had terrible migraines all her life but when the MS got bad (SPMS) the migraines stopped completely??? Her MS was in the arms & only moved to the legs in her 80's.

My voice has started fading in & out and choking can be a problem but pain when chewing sounds awful.

Both she & I have had that terrible pain on the surface of the skin. It is the nastiest symptom I know!!!!! I think its even worse than the spasms because it can be there continually. Yes, I too had it so bad that hot water hurt and hot showers had been my salvation to stop the spasms. My skin pain was worst at night which meant I could not wear any pyjamas or bear the touch of a sheet or blanket. I sometimes found I could tolerate a towel (softer I think). Could not sleep during the day because of the spasms that would wake me after 10 minutes & at night I had skin pain & spasms. I was going demented.

I have always had some ache or stinging pain in my torso & legs for the past 12 years. It gradually increased. It was my worst & main symptom. But now I have a pump with intrethecal baclofen & NO pain. Also much less spasticity. It has been a miracle & I feel I have my life back. Have you tried oral baclofen? Otherwise remember you do not have to suffer there is always the pump. smilewinkgrin
Have had relapsing/remitting MS since 10 yrs old. Secondary/progressive since 1995. Baclofen pump since 2008.
Love is a many splendoured thing


wake_up_in_the_rain
New Member


Date Joined Apr 2009
Total Posts : 8
   Posted 4/29/2009 8:22 PM (GMT -6)   
wow!!! that sounds really bad!!! I was just diagnosed on march 12 of this year and I take the oral baclofen now, but I really hate the way it makes me feel. I already have weakness in my legs and that makes it much worse even though it takes my spasms away...I am also on Avonex, I have been taking that for 6 weeks now and the side affects of that are pretty bad for me even though as time goes on they have been getting lighter, but if I dont take a pain reliever with it I can't function the next day. This morning I woke up and I couldn't even hold up my own body weight, though this symptom goes away as the day goes on.

popsie
Regular Member


Date Joined Aug 2008
Total Posts : 271
   Posted 4/30/2009 1:30 AM (GMT -6)   
You're right about baclofen making the legs weaker, it affects me that way as well.

The left leg is the worst & if I stand on it I shake a lot. If I stand on the right leg it is not so bad. With the pump I can have a complex continuous dose were I have virtually none in the day and then from 8.00pm I have much more cos my spasms & pain were the worst at night.

I don't like the weakness but I can live with it. I could not continue living with the intense pain & increasing spasticity
Have had relapsing/remitting MS since 10 yrs old. Secondary/progressive since 1995. Baclofen pump since 2008.
Love is a many splendoured thing

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