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Regular Member

Date Joined Dec 2008
Total Posts : 51
   Posted 4/30/2009 5:10 PM (GMT -6)   
I have had 2 mri's of my brain and lower back along with a spinal tap. All came back negative. I was tested for lyme and did have a positive lyme test although the diagnosis is clinical. My lyme symptom mimic ms. The antiobiotic treatment for lyme is really difficult and I have yet to feel like I'm turning the corner on it. I worry continually about whether I really have ms which has not been diagnosed. My question is whether it is possible to have ms without any lesions showing up in the brain and with a negative spinal tap. My neurologist feels that we have definitely ruled out ms. I found out from my neighbor who has similar symptoms as mine and is waiting for a spinal that there is a small percentage (5 or 10?) of ms patients that don't have lesions in the brain, but are diagnosed via spinal.

Any input will be much appreciated

Forum Moderator

Date Joined Jan 2007
Total Posts : 3571
   Posted 4/30/2009 10:58 PM (GMT -6)   
It is extremely rare and difficult to get an MS diagnosis without lesions.  Most doctors won't give that diagnosis.  The disease name indicates the presence of lesions.  On the rare occasion of a diagnosis of MS without lesions, that diagnosis is questioned if lesions don't show up within the next year or so.  If you have a diagnosis of lyme, that can explain your symptoms.  MS is a diagnosis of exclusion.  Until you are considered clean and clear of lyme AND you have no lesions, negative lumbar puncture, then I can't imagine you receiving a diagnosis of MS. 

Gretchen       co-moderator MS board       diagnosed with MS July 2006
I have no lesions on my soul and so I will live with no limits.

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