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Crohns & MS
New Member


Date Joined Apr 2009
Total Posts : 15
   Posted 5/1/2009 11:36 AM (GMT -7)   
I have had Crohn's and MS for a few years now and am not responding to my current Crohn's treatment.  Because of my MS I am limited on what I can take for my Crohn's.  Immuran is no longer working and I can't do any of the Remicade category drugs.  I have been to see my doctor and to the Cleveland Clinic but neither talked about LDN (I am talking about doctors for my Crohns).  I have recently read some information on LDN and was wondering if others are taking it for Crohn's and/or MS?  Why is this drug not talked about more?  I would like to talk to my doctor about it and I have done a little research on the internet about it but was wondering what others experiences are with it (anything bad about using it - it always seems there are bad side effects for the drugs I need to take).  I am currently taking Avonex for my MS and have done very well with MS - I don't have any problems with MS (my syptoms are my legs get tired easily, I have had a few more episodes of trying to recall and name but can't - not sure if that is MS related? and then I have problems with needing to be by a bathroom at all time - have issues with making it in time and doctors can't tell me if that is because of my Crohn's or possible nerve damage from MS).
 
Please just let me know what LDN has done for your MS?  I know the other MS drugs are there to help prevent further episodes but what is LDN suppose to do?
 
Thanks,
Katie

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3550
   Posted 5/1/2009 3:00 PM (GMT -7)   
Hey Katie,

I am not on LDN but I know you cannot take it with avonex. You also cannot take it if you use any narcotic type medication. From what I have heard, LDN has been available off label for at least twenty years. There is not a lot of good double blind studies on it....that in itself is very controversial. There are some good anecdotal records of people loving LDN. It is on the books now as something to be studied. Many think it is a good drug for treating symptoms but the jury is still out on whether or not it actually slows MS progression. I have heard more goodt things about LDN and Crohn's than for MS.

The only MS medication you can take LDN with is copaxone. That would make for a good study. I would love to see a good study on LDN and copaxone efficacy.

Contrary to what people usually have to deal with, I have heard that with LDN there are little to no side effects. Have you tried googling it? There must be a ton of LDN sites. It is pretty hot right now in the medical world.
Gretchen       co-moderator MS board       diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


LymeFrustration
Regular Member


Date Joined Oct 2007
Total Posts : 61
   Posted 5/8/2009 6:49 PM (GMT -7)   
I am currently taking LDN for my MS, as well as Ceftin and Zhang herbs for my Lyme Disease.  This combination has definitely been a miracle for me.  I would encourage you to look into the LDN, as it may be a treatment for your Crohn's and MS both.  I found the link below previously in this forum, which helped me tremendously:
 
 
I live in rural PA, and my local pharmacists never heard of this.  (You have to get this from a compounding pharmacy.)  I get my prescription filled at Irmat Pharmacy on Park Avenue, NY (a recommendation also from this forum previously).  I simply faxed them my prescription, and they confirmed it with my doctor and then sent me my medicine by mail.  You can google them for more information.  This medicine is less than $1 per day.
 
Good luck!
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