avonex to rebiff

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pokey79
Regular Member


Date Joined Aug 2007
Total Posts : 144
   Posted 5/7/2009 8:12 PM (GMT -7)   
Saw the doc. today and we are going to switch from avonex to rebiff.I need to wait two weeks with nothing then if the insurance is a go start the rebiff. Am a little nervous about it all.Avonex was the only thing I was on but it isnt working..He said I need something stronger..Going to try with the auto-inject.If that doesnt work there are plenty other options he said..I think he meant tysabri or novatrone or even betaseron. Not copaxone tho...Not sure why...Oh and i ordered a wheelflex today to.....I am anxious to get that and get started with it....And had to give in and get a shower seat too..I put that off for along time and I dont know why I did it makes things so much easier.Saves some energy...Which is good....barb

             


diaganosed 1983
avonex once weekly
steroid infusion every three months for three days
mycoline three times a day
fosamax once a week
bladder meds. daily
calcium/multivitiams
synthyroid
 
 

Post Edited (pokey79) : 5/7/2009 9:17:37 PM (GMT-6)


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3550
   Posted 5/7/2009 8:43 PM (GMT -7)   

Hey Barb,

I am glad to hear that your doctor is trying to find a formula that works for you.  I truly hope it helps.  I am so glad to hear about your wheelflex.  That is so great.  I remember you talking about that at chat a while back.  We have a shower seat.  It is great!!!  We had it built into the shower wall for my husband (amputee). 

As always, it is nice to hear from you.


Gretchen       co-moderator MS board       diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


Meche
Regular Member


Date Joined Nov 2008
Total Posts : 41
   Posted 5/8/2009 3:53 AM (GMT -7)   
Hey there,

I am on rebif and it has worked really well for me, I take an injection 3 times a week, I choose Mon, Wed and Fri as my days so I could get weekend off. I started on 8 and now on 22 which has helped me.

Good luck with it hope it works well for you too
Meche xx


pokey79
Regular Member


Date Joined Aug 2007
Total Posts : 144
   Posted 5/8/2009 6:45 AM (GMT -7)   
thanks were you on anything else before? i dont think i will mind the smaller needle!!! barb
diaganosed 1983
avonex once weekly
steroid infusion every three months for three days
mycoline three times a day
fosamax once a week
bladder meds. daily
calcium/multivitiams
synthyroid
 
 


Meche
Regular Member


Date Joined Nov 2008
Total Posts : 41
   Posted 5/9/2009 3:01 PM (GMT -7)   

Hey Barb,

No Rebif was the first thing I was put on and thankfully it seems to have worked for me.


Meche xx

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