Incontinence & MS?

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Steph57
Regular Member


Date Joined May 2008
Total Posts : 58
   Posted 6/7/2009 3:29 PM (GMT -7)   
Hi everyone!
I am looking for some knowledge, experience, wisdom, and insight into something that may or may not be MS-related. During the past week or so, I have been experiencing a bit of incontinence. Sometimes the feeling comes and goes until I can get to a bathroom, other times my bladder takes over (no public humilation, YET!) and there is some evidence of a small "accident." Also, everytime I do a urine test, I'm told I have a UTC, though I do not feel any of the annoying symptoms. My OB/GYN ordered a "post-void residual" test to determine if the UTIs are caused by remaining secretions of urine, even after I've "done my business" completely. Though these events are a dichotomy, I sense they are lated as regards the impact of MS on the muscular structure.
Anyone have this problem, or know something authoritative about it? I don't want to start buying Depends!!!
confused  
Steph57
 


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3546
   Posted 6/7/2009 5:20 PM (GMT -7)   
Hey Steph,
 
I have a bit of a problem.  I have neurogenic bladder.  I have the urge that I have to go, but then there is some residual urine often left in the bladder.  This causes more frequent bladder infections.  I take cranberry extract every day to make my urine acidic.  This helps keep the bladder infections down.  When your urine is acidic, it creates an unfriendly environment for bactieria growth.  It is very safe to take as a long term supplement.  I have had excellent luck wth it.  Both of my doctors (neuro and pcp) have recommended this. 
Gretchen       co-moderator MS board       diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


GrizLeeB
Regular Member


Date Joined May 2009
Total Posts : 25
   Posted 6/7/2009 9:35 PM (GMT -7)   
Steph, I "leak" :)  The urologist I've been seeing put me on Detrol and that has helped.
 
He tells me my bladder muscles are being affected by MS and are spasming (but I dont feel it).  Urine leaks out and I don't feel that either.  I sit a lot during the day and have had to force myself to get up and urinate more often than I might otherwise.
 
I also get UTI symptoms frequently, but after a few days they go away.  Doc says this is just more MS issue and not something I need to treat with an antibiotic.
 
 

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3546
   Posted 6/8/2009 6:16 AM (GMT -7)   
My MS specialist wants me to avoid UTIs at all costs.  Any infection can cause an immune response that can cause an attack on myelin.  I am tested for UTIs every 3 months by my PCP and I am treated with antibiotics in order to prevent an MS flare.  Luckily since taking the cranberry extract I have not had a UTI in over two years.
 
One way to deal with this is also to see an neurological urologist.  They can teach you to self cathertize so you can make sure you are not retaining any urine.  If you are not retaining urine, you are reducing the risk for a UTI. 
 
We have a member here that after self cathing for a few months, has reduced her bladder problems significantly. 
Gretchen       co-moderator MS board       diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


Steph57
Regular Member


Date Joined May 2008
Total Posts : 58
   Posted 6/8/2009 3:28 PM (GMT -7)   
Thanks for all the experienced info folks! I feel as thoug I am either leakin'rkeepin'! I will look into your suggestions and let you how it goes.
Piddlingly yours,
Steph57
blush  
 


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3546
   Posted 6/8/2009 4:53 PM (GMT -7)   
Good luck.  You are a trooper to maintain a good attitude about all this.  Good luck and do keep us posted.
Gretchen       co-moderator MS board       diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


popsie
Regular Member


Date Joined Aug 2008
Total Posts : 271
   Posted 6/14/2009 11:24 PM (GMT -7)   
Hi Steph,

I have had all the urgency, frequency, leaking problems, including having to change my clothes several times a day eventhough I was wearing a pad. Last year I was in hospital getting a pump implanted for pain & spasticity & while I was there I had daily bladder ultrasounds. Even if I had just been to the toilet I was retaining up to 400ml. After seeing a urologist & doing tests he said he did not think I had a spastic bladder but that it was very stretched and I needed to self catheterise 3 times a day.

I felt miserable about this but the moderator wrote that she used to teach kids to do it & that made me feel ashamed that I was such a coward. So I learnt how to do it & it really was not hard. It really did help a lot

After about a month I noticed that I did not seem to be retaining so much urine. At about this time I started taking urologic which is a herbal supplement to strengthen the bladder. Then I found that I was regaining more control & more sensation. (Several months earlier I had lost the urge to pee and had to do it by the clock.)

The BEST NEWS is that I no longer need to self catherise, and my bladder control is so much better its as good as it was 10 years ago. So I would really recommend seeing your urologist sooner rather than later and you might save yourself years of misery and despair.

I agree with Gretchen about the UTI's I am very acidic (which I used to think was a problem) but I have never had a UTI.

If I take vesicare which the urologist suggested I do not leak at all, ever

Good luck
:-)
Have had relapsing/remitting MS since 10 yrs old. Secondary/progressive since 1995. Baclofen pump since 2008.
Plant your own garden & decorate your own soul instead of waiting for someone to bring you flowers.
Know that you are strong, worthy and can learn & endure.

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