I have had all the urgency, frequency, leaking problems, including having to change my clothes several times a day eventhough I was wearing a pad. Last year I was in hospital getting a pump implanted for pain & spasticity & while I was there I had daily bladder ultrasounds. Even if I had just been to the toilet I was retaining up to 400ml. After seeing a urologist & doing tests he said he did not think I had a spastic bladder but that it was very stretched and I needed to self catheterise 3 times a day.
I felt miserable about
this but the moderator wrote that she used to teach kids to do it & that made me feel ashamed that I was such a coward. So I learnt how to do it & it really was not hard. It really did help a lot
a month I noticed that I did not seem to be retaining so much urine. At about
this time I started taking urologic which is a herbal supplement to strengthen the bladder. Then I found that I was regaining more control & more sensation. (Several months earlier I had lost the urge to pee and had to do it by the clock.)
The BEST NEWS is that I no longer need to self catherise, and my bladder control is so much better its as good as it was 10 years ago. So I would really recommend seeing your urologist sooner rather than later and you might save yourself years of misery and despair.
I agree with Gretchen about
the UTI's I am very acidic (which I used to think was a problem) but I have never had a UTI.
If I take vesicare which the urologist suggested I do not leak at all, ever
Have had relapsing/remitting MS since 10 yrs old. Secondary/progressive since 1995. Baclofen pump since 2008.
Plant your own garden & decorate your own soul instead of waiting for someone to bring you flowers.
Know that you are strong, worthy and can learn & endure.