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New Member

Date Joined Jan 2009
Total Posts : 6
   Posted 6/8/2009 8:28 AM (GMT -6)   
Hi, I am having side effects from Rebif & am wondering if any one else has/had this problem.
 I was on Avonex for 7yrs with no problems.  My ins, company dropped Avonex & I had to switch to Rebif,  did fine until the 2nd dose of 44  Then I woke with rapid heart beats & tingling from head to toe.  Changed dose to 22 still same problems 24/7 days a week   Stayed on for 2mo.  was able to switch back to Avonex which as usual the side effects from one go with the other.  the tingling kept getting more intense.  Neuros only answer was neurotin & it was me not the Rebif.  Stopped taking all ms drugs & 3 mos later the rapid heart beat has slowed but the tingling is still here 24/7 & it is really getting bad.  Anyone else ever have this happen?

Forum Moderator

Date Joined Jan 2007
Total Posts : 3571
   Posted 6/8/2009 6:51 PM (GMT -6)   
Hey Lindz,
I am so sorry to hear you are having such problems!!  We have had some here that have had constant pain from rebif.  Other seem to do fine on it.  It is a shame that your insurance has put you through all this.  I am sorry I don't have any answers for you.  I just wanted to show my support.
It could be that with the change in meds you have flared a bit.  I hope you are feeling better real soon.
Gretchen       co-moderator MS board       diagnosed with MS July 2006
I have no lesions on my soul and so I will live with no limits.

New Member

Date Joined Jan 2009
Total Posts : 6
   Posted 6/8/2009 9:25 PM (GMT -6)   
Thanks for your support!!  It does mean a lot
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