People with MS, how were you diagnosed?

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New Member

Date Joined Jun 2009
Total Posts : 12
   Posted 6/12/2009 1:11 AM (GMT -6)   
I have so many diffrent problems and although I am thinking they are stress realted..they are so chronic and the docs cant explain half of them..I was wondering how any of you were actually given the diagnoses of MS?
Thanks for the help

Forum Moderator

Date Joined Jan 2007
Total Posts : 3568
   Posted 6/12/2009 8:31 AM (GMT -6)   
In late May of 2006, I began to develop vertigo. I thought I had an ear infection. I saw the doctor who wrote me a script for antibiotics. I took them and didn't feet better. It was the end of the school year and I thought I wasn't getting better due to the stress of finishing out the year. about three weeks into this vertigo I was unable to do anything other than wall walk. At this point I had my husband take me to the ER. I was admitted and after spending four days there, the announced that I had had a small stroke. I went home on aspirin therapy.

I was scared and went right into exercise and diet mode. I felt better. about 4 and half weeks later, I woke just spinning again. Off to the ER we go again. I spent the day in ER while they ran ct scans and another MRI. They sent me home when they didn't see anything. The neurologist called and wanted to see me about the mri right away. He announced that there was another "spot" and this made it inprobable that what I was experiencing was a stroke. He said he didn't know what it was but perhaps brain cancer/tumor, MS, lyme, mengitis, HIV, or some other infection. I had a lumbar puncture the next day. It clearly indicated O bands while ruling out the other junk.

I was referred to UCLA MS clinic. I saw an MS neuro there and she ordered evoked potentials and a thoracic and cervical mri. After a third lesion was found, and I had failed the evoked potentials MS was diagnosed. I also had a positive babinski as well as a few other abnormal reflex repsonses.

I started Copaxone in October 2006. I have had some progression since. I have had one big flare and a few minor ones. I am doing quite well really. I am very blessed that I was diagnosed so quickly and have received good medical treatment. I am aggressive about diet, exercise and supplements as well as remaining very postive. I have a wonderful life that is filled with blessings and that is my best defense against the desease for which there is no cure as of yet.
Gretchen       co-moderator MS board       diagnosed with MS July 2006
I have no lesions on my soul and so I will live with no limits.

dragonflyand rainbows
New Member

Date Joined Jun 2009
Total Posts : 4
   Posted 6/17/2009 1:56 PM (GMT -6)   


My story began in 1996  I was in a car accident and got a really bad whiplash with constant headaches/migraines.  When I say constant I truely mean there has not been one minute since that morning in 96 that I have been head pain free.  I had gone to many doctors and after 3 years of feeling like a garbage dump I demanded to have an Mri done.  I took the mri films into a local Neuro and I asked for his opinion.  The first films were clean but 2 years later more mri films had spots/lesions. The neuro said the scary word  MS  and that I needed to start treatment right then.  I started to be seen at the local VA hospital.  I told them I had problems with migraines and that I had just been diagnosed with MS.  They were a total failure at treating the migraines and it wasn't until they were treating me for 4 years did they start to do anything towards the MS.  Currently I have the migraines, facial numbness that sometimes feels like I have just been to the dentist and other days I feel like I have been punched in the face by Mike Tyson. I have left hand swelling, stiffness and  numbness that the dr's say is a part of the MS but I think it is something else.  The VA  messed up getting the spinal tap fluid sent out to the right lab in time so I have questionable findings and I refuse to redue the tap unless I am completely sudated.  The 2 week migraine after words was soooooooo bad I wanted to rip off the heads of every doctor at the VA.  There is not enough unkind and ugly words in all the languages on this planet to express what I think and feel about the VA. Since the spinal tap I have had numbness down my lower back, into my anis, and into my vaginia. I have lower leg cramps every minute of every night and day.  I feel like I just got up off of the floor after having my legs crossed for 3 hours.  My ankles feel like I just sprained them and many times I can not find a comfortable position for them.  The soles of my feet both ache, sting, and burn. Just getting up in the morning my feet feel like I am walking on broken glass.  I have right hip pain and mumbness with stinging going down the outside of my thigh from my hip to my knee.  I am now having memory problems and last Dec I got a headcold that had my head running like Niagra falls had moved into my head.  I was coughing and sneezing so hard I could hear my back pop. The cold lasted for 2 months and then it turned in to a sinus infection with dizziness. I am still having dizziness problems as of today in mid june.  My energy is gone, my memory is gone, my ability to focus and conplete tasks is gone.  I need to get back to work but there simply is no motivation left in my soul. Nov 08 I had minor shoulder surgery. Everything is healed but I really need my own energizer bunny to help me keep going and going.   All the meds I have been on over the years has made me gain lots of weight and nothing has taken it off again.  Now I have entered the peri menopause stage and the hot flashes are killing me.  last summer I started using the avonex but it made my migraines worse and gave me 4 days of flu like feelings every week. Right now I am not using anything.  Me and needles have never been friends and never will be.  Getting shots daily or weekly is not ever going to happen.

none of my family, friends or coworkers knows of my ms diagnosis just my doctors so some days it is hard to keep my painted clown face on.


Post Edited (dragonflyand rainbows) : 6/17/2009 1:05:06 PM (GMT-6)

tropical dreams
Regular Member

Date Joined Sep 2006
Total Posts : 76
   Posted 6/18/2009 9:59 AM (GMT -6)   
In 2003 I had a very severe headache from the back of my neck up to the top of my head. I was so nauseous (sp). Saw Doc immed in ofice then sent me for a ct. She called same day saying poss stroke or ms. Had tons of testing then she referred me to a Neuro. Had spinal he told me prob ms.

Moved to FL in 04 (to be with family) in 05 I woke up with a numb leg. After more testing and Neuro referral I was dx in 8/06 with ms.

2008 I was dx with Arthritis and just this yr I was dx with Fibromyaglia and RA.

Dx 08/02/06 MS
Dx 2008 Arthritis
Dx 04/09 Fibromyalgia & RA

New Member

Date Joined Jun 2009
Total Posts : 8
   Posted 6/19/2009 7:36 AM (GMT -6)   

DEMAND AN MRI WITH CONTRAST OF BRAIN AND SPINE!  I went to Dr's for 5 years with no diagnosis.  By the time I saw Neurologist I was acute and have 24 holes in my brain.  Two weeks after diagnosis I was bed ridden for year!  Even my neurologist was furious!  DO NOT LET THEM KEEP TELLING YOU IT IS DEPRESSIN OR FATIGUE!  Please please do not be like me.  Insert yourself into your care!

BLessings and prayers!




I have MS but MS is not me!

Regular Member

Date Joined Apr 2008
Total Posts : 69
   Posted 6/20/2009 10:58 AM (GMT -6)   
Hello all, I thought that Headaches were not a symptom of MS...
i have a boyfriend who has Lyme, and we are now hearing it may be MS..
have any of you looked into Lyme? it sounds like you may have it...
although maybe there just so darn similar!
im sorry, excuse me,
im just so frustrated with this debate!

New Member

Date Joined Jun 2009
Total Posts : 8
   Posted 6/20/2009 11:14 AM (GMT -6)   


I suffered from migraines for 15 years.  I would even have the kind called a cycling migraine which would last a week!, with shots!.  Then they began to burn from the base of my neck to the top of my head.  24 lesions all in the brain - only two on my spine yet I have enough damage to the brain to make walking a challenge.  I was checked for RA, Lupus and Lyme disease. I was healthy even my blood work was always perfect, I just felt like #*#*#*#*#*#*#* all the time.

It was then labeled Chronic Fatigue Syndrome - Bolgna!!!!!!!!!!!!!

Regular Member

Date Joined Apr 2008
Total Posts : 69
   Posted 6/20/2009 12:26 PM (GMT -6)   
Barb, sorry to hear that you have been suffering from this...
I'm in the midst of this whole, is it Lyme or is it MS debate...its tough

im loosing hope, not sure where to go, what to do next, and what the right answer is..

since treatment how are your headaches?
any other symptoms?

the lesions on your brain, are they progressing since treatment has begin?
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