I love you!!! You have just echoed my ideas. I have decided that I am going to the appointment in July and asking this doctor to explain to me why i have all these symptoms. I asked them on the phone what was wrong with me then and they couldn't tell me anything but my results.
My first neuro was a specialist in MS and sleep related illness. Unfortunaly he had to close his practice due to his own medical problems. I am gonna listen to what this doctor says and if I don't agree with him, that will be my last appointment. I am going on the hunt for a new neuro. I did the research after his office told me that I had normal spinal fluid. Everything I found pretty much told met that a spinal tap for MS is nothing short of un-need torture. My first neuro never did one because all the other tests pointed in this direction.
This doctor pushed me into this test. I didn't want it done, but he made it sound like I didn't have a choice. He said it would help my disablity case if he could prove that I had o-bands in my spinal fluid. He also told me that he would treat me like I had MS until this test result came in. He said that if it came back normal that I didn't have MS. Then he went on to inform me that if it's not MS, it will end up one of 2 ways. It will be some kind of simple fix or it's gonna end up being worse than MS. He made it sound like this would be the final proof needed to say MS. That is how he explained it to my husband. He said that everyone that has MS has o-bands. I was his pin cushon for no reason.
I also noticed this week that my medical records from my old neuro are incomplete. I have forms coming from the nys medical board. They are gonna help me track down my test results so that my records are complete. I am missing at least a couple of MRI's, an EEG, a VER and a whole bunch of blood work.
Ya know, the more I think about
this.....the more I want a new doctor!!!! The great part about
our private insurance is that I can see any in-netowrk specialist without a referal. I can pick one off their web site and make my appointment. I think I will start with doctor researching again.
Love many, trust few, always paddle your own canoe!
dx's: not sure anymore
meds.: none at this time