muscle and body won't stop jerking and twitching

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

MrsMacD
Regular Member


Date Joined Jan 2005
Total Posts : 117
   Posted 6/21/2009 12:15 PM (GMT -6)   
Hi all,
 
I am new here, came on looking for advice and support. For awhile now, my legs, arms and upper body, (and head sometimes) will jerk, jump and my leg muscles are constantly twitching, jerking, or ticking. (all the names I call it) It is driving me crazy. My legs have been the worst this past two weeks. So bad that the muscles are constantly sore because of it. Any ideas how to help with this? Hot bath is out of the question. lol Even my arms, hands and fingers will jump as well. The worst is when I am laying down falling asleep or have my eyes closed. My whole my either at the same time or different parts will jump so hard. I don't know how to stop it. It's soooooo annoying!!!!
 


stkitt
Elite Member


Date Joined Apr 2007
Total Posts : 32602
   Posted 6/21/2009 4:50 PM (GMT -6)   

Hello mrsnank

Welcome to the MS forum.  I was wondering if you have a Dx of MS or if you would have any other disorders or take any meds that may be causing your problems?

There are many diseases as well as medications that could cause muscle twitching.  Have you been evaluated by your physician?

I am sure members of this great forum will be along to talk with you too.

Take care and sorry to hear you are having these issues.

Kitt



 

Kitt,
Moderator: Osteoarthritis & GERD/Heartburn
Co-Moderator: Anxiety/Panic, & Depression
*~*
http://www.healingwell.com/donate *~*
"When you find peace within yourself, you become the kind of person who can live at peace with others."
Not a mental health professional of any kind


MrsMacD
Regular Member


Date Joined Jan 2005
Total Posts : 117
   Posted 6/21/2009 5:20 PM (GMT -6)   
Hi Kitt,
Thanks for your response. I was dx with fibromyalgia 6 1/2 years ago. Did all the blood testing and had an MRI. Every flare up I have my symptoms get worse and worse. My doctor now believed years ago that I had MS, but reading my neg MRI from 7 years ago made him think that, well, maybe I didn't. I used to live in PA, but drive down here where I live now to see him, because he is wonderful. Now that I live here for almost a year I have been under his care ever since.  Anyway, I started with this crazy twitching on and off a few months ago. At one of my monthly visit with him, after it had gotten worse, he figured it was the ultram I was taking and took me off of it. It seemed to have calmed down a bit, but the last two weeks it has been back to be worse than it was before I stopped the ultram. He is a bit confused and said that the other meds I am on would not cause this to happen. It is pretty much constant now. By the way, he also tells me that I am the worst case of fibro that he has ever seen.
 
This constant twitching and jerking seems to be making me be very unbalanced.  Unless it just all goes together. I was standing at the counter of a convenience store and the top part of my body kept bopping forward.  My legs are very wobbly and I seem to get tripped up if I try to turn around too. Falling up and down stairs as well.  OMG I went to my sons high school one time and I fell up the stairs twice and two girls laughed. It was so emarrassing. It's hard to explain in writing, but it is very noticable when people see me.  My legs, arms and body will just move plus I get terrible twitching in my thigh muscles which makes them so sore. (like I don't have enough pain already)
 
I wish I could describe it better. I went to a Neuro years ago, he did a physical exam and said neg for parkinsons which runs in my family. All this was 7 years ago and like I said before, everything has gotten so much worse since then. Fibro is not supposed to be a progressive disease. I seem to develop new symptoms all the time. It's so crazy!! I could list all of my symptoms another time if anyone wants to now them. I would be happy to get other people's opinion as well. The list is long lol (if I can remember them all) lol My memory is sooo shot. Short term and most of my long term memory is gone as well. There are so many things from my past when I was younger and even only some years ago that I have lost. SIGH
 
Since this jerking has gotten unbarable, I have also been sleeping like crazy. I can't stay awake more than 3-4 hours at a time. I just get soooo exhausted. Now fatigue is normal with fibro and my meds, but never this bad. Most all of my MANY symptoms have gotten really really bad and I have aquired new ones with each flare up. I want to be tested again plus have more extensive tests that I didn't have back then. I, my family, and my doc have been convinced that I have it, I would just like the dx so I could begin the propper treatment. I came here to see if anyone else has this badly and what they do for it if anything can be done.
 
Thanks for reading!! turn
 


popsie
Regular Member


Date Joined Aug 2008
Total Posts : 271
   Posted 6/21/2009 8:27 PM (GMT -6)   
Hey mrsnank,

I am so sorry to hear about all you are going through. I have restless legs (& the occasional arm jerk) & they drive me crazy. They are also worse at night. The RLS does seem to be triggered by allergies to drugs and synthetics for me.

But what you are suffering sounds so much worse because it covers a much larger area & variety.

I know somone with parkinsons and her symptoms sounds more similar to yours. Perhaps while you are waiting for other posts here you could try the Parkinsons board as well & see what they have to say.

Hang in there I am sure you will find some help.
Have had relapsing/remitting MS since 10 yrs old. Secondary/progressive since 1995. Baclofen pump since 2008.

"The past is history, the future is a mystery, the present is a gift."


MrsMacD
Regular Member


Date Joined Jan 2005
Total Posts : 117
   Posted 6/21/2009 10:37 PM (GMT -6)   
Thanks popsie!! I appreciate your kindness so much!!  I too have restless leg. That is so terrible when it comes on. I have had that since I was young. That has even woken me up in the middle of the night. What is going on now is so completly different than RLS. Once I had it in my arms. I was the weirdest thing. I had to keep flapping my arms around like a bird to try and make that feeling go away. lol I used to take requip which worked wonders. I experience the restless leg hardly ever since I had to start taking sleep meds. I just pass out. So nice.
 


popsie
Regular Member


Date Joined Aug 2008
Total Posts : 271
   Posted 6/22/2009 12:54 AM (GMT -6)   
Hi there again,

If you type "restless legs & arms" into the box at the top right of the page (under the Join HealingWell) you will find lots of entries.

I hope there is something there to give you some help.

Hugs
Have had relapsing/remitting MS since 10 yrs old. Secondary/progressive since 1995. Baclofen pump since 2008.

"The past is history, the future is a mystery, the present is a gift."


MrsMacD
Regular Member


Date Joined Jan 2005
Total Posts : 117
   Posted 6/22/2009 8:50 AM (GMT -6)   
Thanks again.
 
So, is this not something anyone else experiences?
 

New Topic Post Reply Printable Version
Forum Information
Currently it is Sunday, September 23, 2018 7:24 AM (GMT -6)
There are a total of 3,005,817 posts in 329,266 threads.
View Active Threads


Who's Online
This forum has 161807 registered members. Please welcome our newest member, Wimp7755.
257 Guest(s), 8 Registered Member(s) are currently online.  Details
sandyfeet, Mike0228, Sherrine, Pratoman, Jerry_Delaware, Ultimo_G, franko63, limey