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LeiaS198
New Member


Date Joined Jun 2009
Total Posts : 1
   Posted 6/23/2009 1:55 PM (GMT -7)   
I am new to this forum and wonder if anyone else experiences something similar to what I exprienced.   This past weekend I was outside and no matter what I seemed to do, I could not get my body temperature to cool down.  It go to the point, that I blacked out because of how how I got.  Once I was able to cool down, I felt fine and had no further problems. 
This is extremely frustrating since I used to spend my summers in college working in summer camp and was hot all of the time.
 
 

popsie
Regular Member


Date Joined Aug 2008
Total Posts : 271
   Posted 6/24/2009 12:39 AM (GMT -7)   
Hi Leia,

Sorry to hear you are experiencing such an extreme reaction to heat. We MSers do generally find heat difficult but I have never experienced anything as bad as what you describe.

You can get both a cooling vest and a cooling neck tie which you might find helpful. If I am desperate I pour a little water from my water bottle down my T shirt . Seems to work for me. I am sure some others on the board will come up with some good suggestions.
turn
Have had relapsing/remitting MS since 10 yrs old. Secondary/progressive since 1995. Baclofen pump since 2008.

"The past is history, the future is a mystery, the present is a gift."


Motown John
Regular Member


Date Joined Jun 2005
Total Posts : 475
   Posted 6/25/2009 7:41 AM (GMT -7)   
Dear Leiah:
 
One of things I miss the most post-MS DX, is going outside in summertime....
 
No can do anymore. 
 
Like many other things....
 
As it is.....John confused smhair
DX'ed June 21st, 1987
 


bizzylizzy
New Member


Date Joined Apr 2009
Total Posts : 5
   Posted 6/28/2009 11:08 AM (GMT -7)   
I was going to suggest a cooling vest as well. I haven't tried it, but I have heard some really good things about it and that the MS Society may actually be able to help you get one. I hate it so bad that you are so heat intolerant and it interferes with your summers. I too am very heat sensitive and have always hated the summers-so I guess no love loss here. lol. Just remember to not over do it and keep yourself as hydrated as possible and take lots of breaks. Sometimes the heat can bring upon a flare that could require some IV steroids, so please be safe.

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3550
   Posted 6/30/2009 7:44 PM (GMT -7)   
Blacking out in not typical for anyone!  I hope you went right to the ER.  I am very heat insensitive but I have never blacked out.
Gretchen       co-moderator MS board       diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


faye59
New Member


Date Joined Jul 2009
Total Posts : 2
   Posted 7/5/2009 10:08 PM (GMT -7)   
hi all im new to this site
i been sweating like crazy does
anyone eles have this plus my feet
and legs dont want to move please let me know
thanks faye

popsie
Regular Member


Date Joined Aug 2008
Total Posts : 271
   Posted 7/10/2009 11:59 PM (GMT -7)   
Depends on your age. I have been having hot flushes since 45 which happens to some with menopause.

I also find humidity makes me feel weak.
Have had relapsing/remitting MS since 10 yrs old. Secondary/progressive since 1995. Baclofen pump since 2008.

"The past is history, the future is a mystery, the present is a gift."


joemoe1809
New Member


Date Joined Jul 2009
Total Posts : 1
   Posted 7/28/2009 6:51 AM (GMT -7)   
Hi I just found this forum, it seems like a great place to talk about MS. I have had relapsing/remitting for 6 years now, but i love to be outside. I use a cooling vest with ice packs in it to make life possible. It really has made a huge difference. I bought mine from www.bodycooling.net and it works great, but I am sure there are lots of other places to get them. Thanks again for providing such a great place to talk about MS.

Post Edited (joemoe1809) : 7/28/2009 8:37:29 AM (GMT-6)


Denjski
Regular Member


Date Joined Aug 2008
Total Posts : 105
   Posted 8/1/2009 12:48 PM (GMT -7)   
I have real problems with heat, but to quote an old cliche, "its not the heat but the humidity"... I have gotten so hot, and unable to cool off I've had to lie down before I fell down,,,but I also found out the best way to cool off is to jump into a pool or, soak my head! It works! you instantly cool down your body temp and I instantly feel so much better including mentally.
It seemed like a good idea at the time


odettesmom
Regular Member


Date Joined Aug 2004
Total Posts : 274
   Posted 8/1/2009 5:19 PM (GMT -7)   
as if nj summer isn't bad enough, went to costa rica for 3 weeks in july. was wonderful! worried about heat, so got some gel paks to keep in freezer where i stayed and stuck a wrapped one inside a cap and changed it regularly. worked very well. find if my head is cooled off, don't feel quite so miserable. linda

popsie
Regular Member


Date Joined Aug 2008
Total Posts : 271
   Posted 8/2/2009 12:51 AM (GMT -7)   
I agree if I cool if my head any way its a big help. My husband has lost his hair and has to wear a woolly hat in winter to keep warm - he says he has read that people loose a lot of heat through the head and the converse seems to be true for us MSers. Its easier than a whole vest if it works for you. wink
Have had relapsing/remitting MS since 10 yrs old. Secondary/progressive since 1995. Baclofen pump since 2008.

"The past is history, the future is a mystery, the present is a gift."

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