I saw my neurologist on Wednesday and he seems please with how I am going with the copaxone shots, and doesn't want to see me for another six months unless 'something' happens...which it won't!
He told me I can cancel my appointment with the neuro-psychiatrist as I am no longer experiencing chest discomfort after my shots. He was just worried that the shots were causing me some anxiety, and maybe they were in beginning, as everything happened so fast, but now I am injecting and handling them like a 'pro' LOL
Like everyone else, I am having good days and bad days, but at least I am starting to have more good ones, which I haven't had in a long time.
I am considering taking legal action against my neurosurgeon for performing spinal surgery that wasn't needed. I sent him a rather nasty letter telling him that I wasn't going to be pay the outstanding bill he sent me for my spinal surgery ($2800 AUD). He called me last Friday to tell me he was upset about
my letter (I basically accused him of negligence) as he thought we 'had a good rapport' I told him I was upset that he missed my dianosis and I was also upset that I had a spinal surgery that could have been avoid. It the report that my neurologist sent him, confirming my MS diagnosis, he said ' she was investigated for disturbed sensation in 2006 and 2008, and on both occasions the neurologist suggested further investigation, but apparently these were never undertaken'
My neurologist said had further investigations been done, my MS definitely would have been diagnosed via MRI , and I would have started 'preventative treatment' back then. The MS society in Sydney has it's own lawyer, so we are waiting on the clinical notes from my neurosurgeon before we decide on how we want to proceed.
Well that's about
all from me for now.
They're not brain lesions, they're 'BRIGHT IDEAS'
Diagnosed with RRMS July 1st 2009