Tired of being tired, and really no answers

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jlp522
New Member


Date Joined Aug 2009
Total Posts : 1
   Posted 8/19/2009 8:13 AM (GMT -7)   
Hello I new here
 
I am so happy to have found this site!  As I sit here and read through the threads I see I AM NOT CRAZY or ALONE.
 
For as long as I can remember I have been in pain of one kind or another.  As  a child my mother has said I was in and out the hospital for pain and other complaints which just disppeared without explanations (such as leg pain (both legs) and numbness, bladder pain, arms going numb (my mom says she came home and I had gotten into her sewing kit and
I had put about fifty needles in my arm cause I couldn't feel them, I think I was around 10-11 yrs old, at sixteen I bled and bled for about 2 weeks, they assumed it was the start of my monthly freind but it lasted 14+ days and then just stopped, they assumed it was caused by the birth control pills they started me on 2 months prior to start my freind (at 16 I still hadn't started). I was released.)
 
I think I have gotten used to these pains because I just learned to live with them.  I will usally wait 2-3 weeks to see if they will go away.  The pains in my legs have never gone away just learned to live with it AFTER years of (in my 20's) pain managment and injuctions in the spine and a procedure where they burn (sever) the nerves. Did not work. I have been wetting myself slightly for 20 or so years (was told to do keegles, I did, I still wet myself) So MANY times I have gone to see PCD for fatigue, was always told it was depression like a good little girl I took the meds, with no real change.  I thought I had Chronic Fatigue or B12 def, I demanded to be tested. NOPE not either of those. All of the above has happened in my early childhood and through my current age of 39, 
 
I became upset when one very stressful last Sept, After a very very stressful time for my family and I, we lost our home to a fire in Feb 2008 and where placed in tempory housing by the insurance co, then couple it with the stress of recovering from such a loss (5 children, just a lil bit of stress) then on Aug 6, 2008 I lost my 6 month old Godson to S.I.D.S, (very very hard even now), on Aug. 12 his funeral, Aug 13 I received phone call from Ins Co they we would have to be placed in another tempory house because they failed to extend the lease, so I had from Aug 13-Aug 31 to not only pack up (a grieving family) but find another home (school started Sep 7, that year 5 kids four schools) needless to say I was losing my mind, moving day I had to leave the care of my move to my 21 yr daughter due to pains in my side, I was taken to the ER (a friday) they found nothing I was given pain meds and released to to see my PCD on monday, on sun I was rushed back to the ER I thought my insides had burst, given more meds and released, was seen by my PCD and sent to a Gastro with the thought of all the pains being diver ticlolst (no clue how to spell it) after many test, nope not that either, during the sametime mhy bladder became very painful with blood in urine, after many test my bladder doesn't empty all the way, in june I was back in the doctors because these are still controlling my life, was told again depression when I explain once AGAIN about the stiffness and heaviness taking over my whole body to the point that when I crossed the room I needed to rest (deppression?) the PA ordered a mri which showed many many white spots rad report says MS, the Nuro said he wasn't sure of MS as the rad concluded and order another MRI. First MRI date 6-15 showed many spots, second MRI date 7-15 has many new spots (I know this because I have a copy of both) I don't go back to the Nuro until 9-15. Does anyone have guess as to what I should be concerned with?  What questions I should ask?
 
Ps I did forget to mention, long term memory loss( for as long as I can remember), now short term memory loss, confussion, dizziness, trouble staying on task to the point that I have just forgotten why or what I was doing just moments prior,
 
any thoughts would be welcomed greatly, Janet

 

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3546
   Posted 8/19/2009 10:58 AM (GMT -7)   
Hey Janet,
 
Find an MS specialist.  MS is a weird one.  For some reason, regular neuros always seem to do this wait and watch stuff.  I am NOT a "down on doctors" type person, but I keep seeing this trend over and over again.  You have brain lesions and no explanation.  You have a possible MS from the radiologist.  That should have been enough to warrant a very close look for MS. 
 
Contact your local MS Society and get the name of a nearby MS specialist.  It is not unusual to drive an hour or two ( I drive two hours to see mine ) to see a good MS specialist. 
 
Typical test you can expect from an MS specialist looking to rule MS in or out:  complete neuro exam of reflexes and responses, evoked potentials (extremeties, vision and hearing), lumbar puncture, complete medical history, extensive blood work to rule out other stuff, MRIs of brain, cervical spine and thorasic spine. 
 
Please keep us posted.  Good luck!  Your worries are NOT unwarranted.
Gretchen  ~  diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.

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