I was on the Lyme board, as I thought I had Lyme.
I went to a neuro and she said she's pretty sure I have MS. She based her opinion on my negative WB results (Lyme test) and MRI. She's sending me for another MRI of my lower back because she said MS affects that part of the back. I have five lesions total and one of them is on my spine. My thyroid number has doubled in the past five months, which puts me slightly out of range, meaning Hypothyroid (underactive). I developed major sun-sensativity in April 2009. I have achy joints and unexplained sore throats.
I am going for a spinal tap and MRI of the lower back this coming Thursday. She said if there is lyme it will definitely show in the spinal fluids. She is testing me for other auto-immune disorders (HIV, Lupus, etc).
After she said "other auto-immune" disorders, I got to thinking back. In 1993, age 20, I had Bell's Palsy. When I was 10 years old, I was diagnosed with two allergies- cold and pressure- both would bring on hives and itching. Such as the elastic band in my underwear or cold raindrops. I eventually "outgrew" the allergies. And now this sun allergy.
Does anyone have any ideas? I am going to see an LLMD (Lyme Literate Medical Doctor) on Wednesday. I figured it can't hurt to get a second opinion.
I'm a little bummed. I'm a little scare of the MS treatments. I've been healthy my whole life and this is really shocking to me, but of course I will deal with it and move forward. I have a beautiful 2.5 year old son, so I need to do whatever I can to stay healthy. Thanks for reading.