I was not diagnosed with MS, but I just saw a regional MS expert for a final diagnosis about my condition. At first, I had terrible muscle spasms that were debilitating. She said she did not believe these were true muscle spasms. She said they were something called "kinesegenic dystonia". It pretty much means dystonia caused by movement. They are also referred to as tonic spasms. It happens in MS and in my case happened because of the lesion in my brain stem. She said she would recommend dilantin, tegretol, or even topomax for these almost seizure like dystonic episodes. I don't know if this helps, or if this could be what you are experiencing, but I thought this was good information that she gave me that I could pass on. Hope you get to feeling better! God bless!
23 years old;
Dx: Acute Disseminated Ecephalomyelitis (ADEM) Feb 2009
Meds: Provigil, Nexium, Lexapro, Adivan, Lopressor, Baclofen, Topomax
Did 1000 mg IV solumedrol for 8 days then weened for 1 and a half months from mid Feb-late March
A merry heart does good like a medicine; but a broken spirit dries the bones.
"This too shall pass."