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New Member

Date Joined Oct 2009
Total Posts : 9
   Posted 10/24/2009 8:43 AM (GMT -7)   
Well i went to the doctor yesterday, MRI results, that was a waste of time. For those that don't know my story here it is....
i am still new to this site and have not got a diagnosis yet but i have the symptoms and spots on my MRI's that are probable to MS. I am fighting with Neurologists about it. .
Anyways, i have alot of pain and spasms as well and there are alot of times it hurts so bad to walk and even move sometimes. I have four boys,
I am on Neurotin( gabapentin) i take up to 2700mg a day. it helps some pain and the tremors mostly, it doesn't help much for spasms, so i was put on tizanidine which helps. its a muscle relaxer, but not as strong as flexeril at least not for me.
I spent 3 months or so in a wheelchair because it hurt to walk and i didn't have the strength or balance to walk. I got alot of help from my boyfriend at the time.  I still use a cart at stores just to lean on and help support me.
doctors know i have tremors, i have muscle spasms, fibro like pain, tingling, numbness, balance issues,weakness, memory issues, extreme fatigue, heat sensitivity, they just wont diagnose anything. they agree that all my symptoms are same as MS.  I have spots on my MRI's a couple Reports have said probable MS as well as some  demylenating desease. however there has been no change and my spinal tap was inconclusive. SO NO DIAGNOSES.
some doctors have labeled me a fake.
I went to a new doctor recently who himself has MS. he ordered a MRI, yesterday he told me there was no change and nothing new. He said he will just continue to watch me and do repeat MRI's he agrees the symptoms are there but not good enough i guess. He added cymbalta to my plethera of meds. its supposed to help pain and energy he said he takes it we will see. The problem is is at the end of the month i no longer have medicaid so i cant afford my medication or dr appts I'm so frustrated and do not know what to do. all these issues and no answer, and the doc has seen the symptoms, he agrees something is up and it is like MS. but idk.

Frustrated Angel

Forum Moderator

Date Joined Jan 2007
Total Posts : 3550
   Posted 10/24/2009 1:42 PM (GMT -7)   
Wow!  What did that doctor say it was then?  I get mad when a doctor says, "hummm you have something going on and it looks like MS but ......I don't really know."  Grrrrrrrrrrrr. 
I am sorry you still don't have any answers. 
Gretchen  ~  diagnosed with MS July 2006
I have no lesions on my soul and so I will live with no limits.

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