Weird Symptoms

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New Member

Date Joined Oct 2009
Total Posts : 19
   Posted 10/25/2009 6:53 PM (GMT -6)   
I originally posted this in the Fibro and Epilepsy boards and was told I should post this here too. Let me know what you think, thanks!

I get these weird episodes almost every day, it's very frustrating. I know I have fibro and reynaud's, my Rheumy thinks these might be seizures, but I've already seen a neuro for this and he says no. Not sure where to go from here.

(Keep in mind this is all on the left side of my body only)
-Temple pain, usually throbbing
-Eye pain, usually throbbing (connected with left temple pain)
-Eye Fatigue, feels tired and gets small
-Whites of eyes turn yellow or pink (goes away as soon as episode is over)
-Arm pain, shooting or stabing usually
-Leg pain, shooting or stabbling, sometimes throbbing
(Basically my entire left side has pain)
-Slurred Speech
-Unable to think properly, can't get words out
-Extreme dizziness, head bobs around
-I am able to hear and understand everything
-Sometimes it feels as if someone has picked up my left side and dropped it down, if that make any sense. I feel the left side of my body lift up and then back down and it happens very quickly and only once.

I have tested my blood sugar to see if that is what is causing the spells, since they happen mostly when I get hungry, but my levels are between 77 and 90, not at a level for a typical hypoglycemic episode. I must eat between 2 to 3 hours to keep from having a spell, but I travel in my job and not always able to eat that consistently. These spells also happen when my body is stressed, i.e., running, walking long distances, after and sometimes during sex, etc. Does this sound familiar to anyone?
Fibromyalgia, Reynaud's Disease

Forum Moderator

Date Joined Jan 2007
Total Posts : 3571
   Posted 10/25/2009 7:24 PM (GMT -6)   
Wow! You have icky stuff there. I am sorry. It doesn't scream MS. I am not a doctor though. MS symptoms are sorta more consistent. The things I deal with don't come and go. They are pretty much constant. There is some variation in severity but for example; I always have vertigo due to MS damage to my cerebellum. That vertigo can be mild or it can be bad enough to make me nauseaus and wall walking, but it is always there. For most of us, there is no "normal" anymore. We have reasonably permanent residual symptoms from the brain or spinal cord damage.

Have you had an MRI? That is pretty much the first test we MSers get.
Gretchen  ~  diagnosed with MS July 2006
I have no lesions on my soul and so I will live with no limits.

Regular Member

Date Joined May 2009
Total Posts : 104
   Posted 10/25/2009 9:20 PM (GMT -6)   
kinda sounds like migraines.........i get most of these symptoms for at least 20 years, ask your neurologist...
God will Give me nothing i cannot handle--i just wish he didn't trust me so much

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