I really feel for you....you are NOT alone! This sounds SO much like what I've been going through for the past two years! The muscle spasms are called tonic spasms; they were one of my first symptoms. I had them mostly in my hands, feet and ankles. I could watch my foot go into a spasm that would literally pull my little toe out sideways, and I had to grab it to make it stop because it felt like it was going to break my toe!
I too have trouble with speech at times (mouth feels "clumsy", hard to form words, sometimes I bite my tongue), plus swallowing (dysphagia). For example, pills get stuck in my throat and I have to wait for my throat to relax before they start moving again.
I had a cluster of these symptoms for a few months last year, then they mostly went away around the time I went gluten free, so I thought they were mainly due to celiac disease. But now they're back.
I've been having double vision almost continually now for months. Sometimes it turns into triple vision. I had an MRI last year but I'm scheduled for another one next week.
I should let you know that I'm already diagnosed with multiple autoimmune diseases plus fibro. I was just diagnosed with SLE last month.
Anyway, last week I went to my neurologist last week with a list of ALL of my symptoms, which include:
1. vertigo (all the time)
3. extreme fatigue (all the time)
4. narcoleptic episodes
5. blurry vision
6. double/triple vision (vertical)
7. "see things" moving/flash out of the corner of my eyes when I move my eyes
9. hearing loss
11. extreme brain fog
12. difficulty swallowing
13. difficulty speaking
14. Raynaud's phenomena
15. peripheral neuropathy, pins and needles in hands and feet
16. numb patches in random spots (side of thigh, toes on right foot, etc)
17. tonic spasms
He just looked at me like "Oh no, she's a hypochondriac". But I asked him to test me for EVERYTHING: MS, Lyme disease, B-12 deficiency, you name it. So he's doing it.
I don't know if I have MS or not.....although the fact that I've had two "episodes" of these symptoms is indicative of MS. I really want to get to the bottom of this!! I should have results of all tests by my birthday (11/23).
IMHO, you should ask your doctor to run a similar set of tests to rule out all of these things and to narrow down the possibilities.
Good luck with everything! I hope you start feeling better soon!
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