I am sort of an emotional mess right now... I am having symptoms but am not sure what to do.. I have Ulcerative Colitis that has been pretty much out of control over the last year so I finally went in October 22nd and had my first Remicade infusion... about 3 weeks later, I started noticing numbness in my right hand, arm and leg.. Now it has progressed and I'm also feeling numbness in my face on the right side and yesterday I noticed I was feeling numb in my left hand and forearm.... I have had over the years, off and on, another symptom that I feel is possibly related. I get this feeling that I am getting poked with a pin in my skin, mostly in my legs and feet. It is painful and feels almost electrical and pulsating for a few seconds each time.. With that sensation, my leg or foot will spasm with each pulse like it's reacting from the pain of being poked... VERY weird... I've been having that sensation a lot also lately..
I went in to my GP about 8 years ago with this pin-prick, spasming pain thing and they did test me for MS with an MRI and it came back ok, so they gave up at that point.. That's the only time I've ever been tested. The pin prick sensation does come and go, sometimes I'll have it pretty much daily for a while then it will go away for a few months... Also I have been becoming very clumsy lately, dropping things A LOT, and feeling a bit "off" like I'm not dizzy, but my equalibrium is off so I can lose my balance easily... Also I have NO memory, I forget everything.. to the point where my friends are constantly reminding me of stuff and it's drivng my husband crazy... lol... In my circle of freinds, it's a well known fact that I can't remember anything and we joke that I have CRS disease... (can't remember S---)... lol.. At least my friends understand my memory problem and work with me thank God... OH and also I can't tolerate heat AT ALL... Also I have noticed that when I'm blowdrying my hair, if I turn my head a certain way or look down, sometimes I get an electrical shock down my neck into my back.. like a "TWANG" or something like that..
I am curious if I did have MS, could the Remicade be bringing it out or making it worse, since it is an immuno suppressant drug.. and I know you aren't supposed to take it if you have MS... That is probably a question for my doctor, but I was wondering if the symptoms I am describing sound like MS....
Thanks for reading this :)