The Liberation Treatment: A whole new approach to MS?

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Dave_NC
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Date Joined Nov 2008
Total Posts : 87
   Posted 11/30/2009 8:34 AM (GMT -7)   
I am not sure who or who has not seen this so I thought I would put up the news report. It is very interesting. I would hope that the "Main Stream" of medicine would at least give it a serious look but up until now it appears only a few have.

www.ctv.ca/servlet/ArticleNews/story/CTVNews/20091120/W5_liberation_091121/20091121/?hub=WFive
Learning and living everyday to the fullest. My MS blog http://mylifewms.blogspot.com/

Post Edited (Dave_NC) : 11/30/2009 8:40:52 AM (GMT-7)


KDA
New Member


Date Joined Nov 2009
Total Posts : 2
   Posted 12/1/2009 8:10 AM (GMT -7)   
This is very interesting and raises alot of questions. I wonder if one of the reasons I am so cold all the time (borderline anemic) has to do with the iron in my blood is being collected in my brain instead of continuing into the blood stream to promote red blood cell production??

Anyone else cold????

Dave_NC
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Date Joined Nov 2008
Total Posts : 87
   Posted 12/2/2009 12:24 PM (GMT -7)   
Wow, this is really taking off on the research side. Quite a few researchers getting involved and some tests starting up. One in Buffalo NY.
Learning and living everyday to the fullest. My MS blog http://mylifewms.blogspot.com/


Dave_NC
Regular Member


Date Joined Nov 2008
Total Posts : 87
   Posted 12/7/2009 8:24 AM (GMT -7)   
I can believe this topic is so dead on this forum. This is sweeping like wildfire all over.

Anyway, here is some info I have gathered over the last few days.

Buffalo Research for anyone interested.

You can send an email requesting information on the trials.
Cheryl Kennedy,dy, LMSW, MPH
Clinical Trial Manger/Senior Project Coordinator
Buffalo Neuroimaging Analysis Center
Email: ctevd@bnac.net

or you can go directly to the application page and fill it out. They appear to be taking new people sometime in January. You must meet all requirements and be able to to attend their facilities.

Application https://vovici.com/wsb.dll/s/8727g41a07

Buffalo Neuroimaging Analysis Center Website: http://www.bnac.net/?page_id=517

Another article I ran across on Buffalo.
http://www.buffalo.edu/news/10562

Canada
I came across this number on the MS Liberation Treatment (CCSVI) Facebook group for people in Canada to call if interested in getting tested in Canada call 1 877 871 4315.
http://www.facebook.com/group.php?gid=339574030721
Learning and living everyday to the fullest. My MS blog http://mylifewms.blogspot.com/


Gretchen1
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Date Joined Jan 2007
Total Posts : 3550
   Posted 12/7/2009 9:20 PM (GMT -7)   
Dave,
 
I am watching this just go crazy on other sites as well.  We seem to have more people asking questions about having MS rather than what is in the pipeline as treatments.  I am very excited to see what happens with this.  I am asking for imaging.  I want to know if I have venous strictures!  I want to know if I have them, do I have to wait for this to be an approved treatment?  Can I just ask for those to be treated just because?  Treating venous strictures is NOT new medicine.  I hope this gets fast tracked.
 
It is very exciting.
Gretchen  ~  diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


Dave_NC
Regular Member


Date Joined Nov 2008
Total Posts : 87
   Posted Yesterday 8:31 AM (GMT -7)   
I now know of a couple people seriously looking into getting this treatment already (6-8 grand total). I am not sure I am ready to hop on that train yet but it is the most promising thing I have seen in some time.

It sure would be a blow to the pharmaceuticals, I am sure they are not behind it at all.
Learning and living everyday to the fullest. My MS blog http://mylifewms.blogspot.com/


Dave_NC
Regular Member


Date Joined Nov 2008
Total Posts : 87
   Posted 12/16/2009 7:57 AM (GMT -7)   
Another News Update.

http://watch.ctv.ca/news/clip247004#clip247004
Learning and living everyday to the fullest. My MS blog http://mylifewms.blogspot.com/


Dave_NC
Regular Member


Date Joined Nov 2008
Total Posts : 87
   Posted 12/16/2009 9:43 AM (GMT -7)   
More info on the Buffalo trials.

http://www.cbc.ca/health/story/2009/12/15/multiple-sclerosis-veins-buffalo.html
Learning and living everyday to the fullest. My MS blog http://mylifewms.blogspot.com/


sandfly
Regular Member


Date Joined Sep 2009
Total Posts : 27
   Posted 12/16/2009 7:02 PM (GMT -7)   
Looks like Vancouver and Saskatoon are going to get involved and start doing some research on this. But as they warned, the doctors will have to be taught how to perform this procedure so it woan't be breaking for a while yet. Don't forget, the dyes they have to inject for the procedure are not safe for everyone, they can have terrible effects on some people.

Dave_NC
Regular Member


Date Joined Nov 2008
Total Posts : 87
   Posted 12/17/2009 7:35 AM (GMT -7)   
More news:

B.C. clinic planning to research MS vein theory

http://www.ctv.ca/servlet/ArticleNews/story/CTVNews/20091215/ccsvi_091215/20091215?hub=TopStoriesV2
Learning and living everyday to the fullest. My MS blog http://mylifewms.blogspot.com/


Cate
New Member


Date Joined Jan 2010
Total Posts : 1
   Posted 1/15/2010 4:40 PM (GMT -7)   
KDA said...
This is very interesting and raises alot of questions. I wonder if one of the reasons I am so cold all the time (borderline anemic) has to do with the iron in my blood is being collected in my brain instead of continuing into the blood stream to promote red blood cell production??

Anyone else cold????



Hi-I suffer big time with the cold-not heat as many MS sufferers do. I have also been diagnosed with low iron-the doctors could never tell me why but now with this liberation finding it makes perfect sense-I do believe the iron in my blood is being housed in my brain and therefore not reading in the blood tests. I have yet to line up the MRI scan to find out if I do have the CCSVI. Does anyone know if this procedure is covered with extended medical?

Tired LP
New Member


Date Joined Dec 2009
Total Posts : 4
   Posted 1/16/2010 7:19 PM (GMT -7)   
 
   I also have these symptoms of being cold and would want to be tested for venous strictures. I will be seeing my specialist at the MS Clinic in Winnipeg, Manitoba Canada.
Hopefully they will have more answers for us.
 
 tiredLP
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