I'm not even expecting any answers. Maybe I'm just venting.
I'm frustrated. I'm sick and tired. I'm depressed.
Long story. Firstly about eight years ago I wake up with right side of face drooping. After going to ER I'm told I have Bells' Palsy. But I don't just get it once. Face gets back to normal but about ALMOST a year later I wake up with it yet again. Then...
Five years ago I was told I had a mild stroke. Went to my local hospital. Felt exhausted. Extreme dizziness. Facing drooping. Weakness and tingling down the right side of my body. CT showed stroke. Was shipped off to the big city of Toronto, Ontario. Nope they said I didn't have a stroke. What?? Told I was suffering from Conversion Disorder. A disorder where patients present with neurolgical complaints but where no neurlogical explanation can be given. Okay?? I'm sent home. For months later I am suffering from "buzzing" in my head and right side tremors and weakness. Family doctor won't even consider it and automatically puts me on anti-depressants. Fine. But symptoms don't go away. Finally a friend gets me in to see another Neurologist who gives me a EEG and MRI. MRI comes clear but EEG does show seizure activity coinciding with the symptoms I describe. Great. I'm prescribed anti-seizure meds. Once the right dose is found I feel like a new woman! IT was amazing. The "buzzing" was finally gone as was the tremors. I have felt pretty good ever since.
A month ago I was sitting at work at break in the cafeteria and in front of everyone I suffered another seizure. I'm so exhausted I can barely move. ER says it was a seizure and sends me home with instructions to call my Neurologist. He revokes my license. Great. I live up north and this is a struggle but understand and would never forgive myself if something to happen while I'm driving so I don't drive. The only diffference from other seizures I have felt is this time I'm so very tired. For weeks afterwards I'm still dragging. AND the fact that my middle finger and index finger are numb and have pins and needles the next day and it last for over a week.
In all honesty I haven't felt well in a while. Extremely tired.
Neurologist sends me for yet another EEG and MRI. This time EEG was good. MRI shows white lesions. Could be indication of aging or could be indication of something else. Neurologist wants to wait and do yet another MRI in June of not only brain but also a full spinal to see if there is any change. He has upped my meds.
I'm tired and frustrated. I THOUGHT we had the answer and I was on the mend. I didn't expect this. Was hoping for him to say it was a hiccup and I'm back on track. Didn't expect to hear about white lesions. Or that he wants to MRI spine.
Bleck. I'm just frustrated.