No worries! Thank you for jumping in. I tend to only check this forum once a day.
Retrobulbar is hard to see in an exam. An opthalmologist might be able to see it better. That pale optic nerve is pretty tellling. I am so sorry!!!
One thing to remember, with MS, solumedrol is only a symptom treatment. It is NOT an actual treatment that will stave off disibility. Once you experience symptoms, ALL the damage is already done. The solumdrol is not going to help things; it only makes your discomfort shorter. For example, if an MS flare is going to result in numbness and paralysis in my left hand, then solumedrol won't fix that. It only helps you get to your inevitable baseline faster. I hope that makes thinks clearer. What I am trying to say is, the solumedrol is totally optional.
I think you are back to trying to rule out MS again. I know you were leaning towads neuro lupus. I hope it is not MS but I am here with any questions you may have if that is what you are facing.
Gretchen ~ diagnosed with MS July 2006
I have no lesions on my soul and so I will live with no limits.