Wow! What a nightmare! I would have walked out half way through after she said a second time that you have seen all the neurologists in the area. There are plenty of "rate your doctor" type websites. I would find one and make sure you post your experience.
Remember for right now, we are a consumer nation as far as medicine goes. I would not waste my money on that doctor.
As far as medical records go, you should have copies of all your MRIs. Your insurance and you paid for those. I have a copy of all of mine and I have to have one every year. They put them on tidy little CDs for you with a written report for each one. I also have all of my post exam notes from my neuro. It comes in very handy when seeing another doctor that for some reason wants more info on your disease. I recently switched PCPs and she was very appreciative of all my records being in order. I keep all my MS stuff in one notebook huge notebook.
You should also know that getting an MS diagnosis evern for someone presenting very obvious symptoms can take a long time. We have members state that it usually takes months and it can take YEARS.
You may want to look into UCSF.......I have heard they have a well thought of MS center. There is quite a lot of research going on over there as well. You might be able to find a study to get into or other program.
Gretchen ~ diagnosed with MS July 2006
I have no lesions on my soul and so I will live with no limits.