tendon/ligament twitching in hands/arms

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blessings723
Regular Member


Date Joined Oct 2009
Total Posts : 289
   Posted 12/28/2009 5:15 PM (GMT -7)   
Just wondering if anyone here has this... i am going to a neurologist next week for an emg- one of my biggest complaints right now is that i have this random internal twitching of my tendons/ligaments in hands and arms- not really "visible" but i can feel it internally- like little "popping" sensations- does anyone here get this?? Thanks!
I refuse to stay sick! Period. 
 
 


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3546
   Posted 12/29/2009 12:14 AM (GMT -7)   
I have never experienced this.  MS is very varied.  It really depends upon where one's lesions are located. 
 
I see that you have been diagnosed with Lyme disease.  Many neuros won't consider MS when Lyme has already been diagnosed.  MS is a diagnosis of exclusion.  If you have lyme, then that is what is causing the lesions and symptoms (according to many docs).  Lyme is one of the great MS mimics. 
 
Hopefully you will aggressively treat the Lyme and find relief.  Best of luck to you.  Here is an explanation of the MS diagnostic process. 
 
http://www.mult-sclerosis.org/diagnosingms.html
Gretchen  ~  diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


Willowmom
Regular Member


Date Joined May 2008
Total Posts : 88
   Posted 12/31/2009 8:21 PM (GMT -7)   
Oh yes, this is one of my biggies, sometimes in my trunk area as well. (spent way too much time with GI doctor over that one). I call it my 'popcorn muscles'. Super annoying, sometimes painful, sometimes limiting of activities...but mostly annoying. Clonazepam helps me. Consistent stretching helps, although if I've fallen off the stretch wagon it can flare it up a bit when I first start. Good luck.

blessings723
Regular Member


Date Joined Oct 2009
Total Posts : 289
   Posted 1/6/2010 1:11 AM (GMT -7)   
willowmom- sorry i never got back to you about this- thank you for your response! i've been trying to figure out even if it is the nerves- but thank you for posting the med you use i am going to bring this up with my doctor. how long have you had this symptom? where all do you feel it? thanks so much!
I refuse to stay sick! Period. 
 
 


Willowmom
Regular Member


Date Joined May 2008
Total Posts : 88
   Posted 1/6/2010 7:14 PM (GMT -7)   
I have probably had this symptom for 5 years (diagnosed 7 yrs ago). I may have had it initially but was focusing on other things. It has become more frequent and persistent in just the last 3 years however. I get it often in my arms (I also get the parasthesias, tingling etc here) , and in my trunk like my ribs and abdominal area. That can be really creepy because it sometimes feels like I recall the flutterings of babies when I was pregnant and of course I know I am not so it just is a bit weird. I spent a lot of time at the GI doctor because I thought there must be something amiss with the colon. But nothing showed. I also get the 'MS Hug' a lot and at the time I did not know what that was so also attributed that to a GI problem. Just in the last few months I have felt this popping sensation in my legs...hoping that is a fluke. Oh, a few times under my jaw, ugh.
My arms and trunk are where I have the most spasticity and sometimes really painful muscle spasms. In my opinion I think the popping is just a different version of a muscle spasm. I have lesions in my cervical spine that explain troubles with the arm. I have never had an MRI below that so I don't know.
They did have me try Baclofen because the popping feeling will keep me awake at night. I found that to be too strong for me and caused like a sleep apnea problem. So I use the clonazepam- this tends to help my overwrought nervous system at night and also the muscle problems. I have been taking .5 mg at night for 3 years. Occasionally I may take an extra .5 during the day if needed.
Longwinded reply, let me know if you have any more questions and also I'll be curious what you find out.

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3546
   Posted 1/6/2010 9:31 PM (GMT -7)   
Hey Willowmom,
 
I take clonazepam as well.  I take it as needed for pain and spasticity.  It works for me as well.  But have you ever noticed it sort of causes restless leg issues?  After I take it I feel better; less pain and more relaxed muscles.  After an hour or so, I am compelled to move my legs.  It kinds makes me crazy!!!  I have to take this just before bed then I sleep through all that silly leg moving junk. 
Gretchen  ~  diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 1/6/2010 11:32 PM (GMT -7)   
Hey Gretchen!

How have you been? I saw this post and wanted to reply. I too get the restless leg feeling sometimes on Klonopin. sometimes, it is in my arms too and I feel like I want to bang my arms against the wall so it will stop. I thought that it was caused from me drinking too much caffeine but now that you brought it up, it may just be the medicine itself. Maybe it's relaxing us too much? I take it right before I go to bed now too so that I can sleep the whole night.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

lymediseasethroughmyeyes.blogspot.com/

Co-Moderator Lyme Disease Forum


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3546
   Posted 1/7/2010 7:16 AM (GMT -7)   
Hey CG!!
 
It is nice to hear from you!!!  I am hanging in there.  Yesterday, I got my MRI report from this summer.  I never picked it up since my neurologist called me to tell me it looked great.  Well I was so pleased when I saw it!  One of my spinal lesions is no longer showing up on the MRI as well as one of my brain lesions!!!  That seems like such good news for me!!!  These two lesions were the very first ones to show up.  It is nice to see that after three years there has been enough remyelination that they are too small to show up on an MRI. 
 
I needed the MRI report as I am switching doctors.  My former neurologist is going into clinical teaching and it no longer taking patients.  What a bummer; I loved her!!! 
 
I hope you are hanging in there.  I still lurk on your board.  Thanks to you I am now obsessed with the wrinkle I have between my eyebrows!!!  smilewinkgrin
Gretchen  ~  diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 1/8/2010 3:07 AM (GMT -7)   
LOL!!! Girl, you make me laugh!! I've been obsessed with the nasty wrinkle I have. It makes me look mean, lol. When I'm in a lot of pain, I tend to squench my face and THAT DARN WRINKLE makes me look gross! LOL

WOW!! That is great news you got back! How awesome. I'm so glad you went and picked up your results. I'm so happy for you:):):)
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

lymediseasethroughmyeyes.blogspot.com/

Co-Moderator Lyme Disease Forum

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