Katie gave you some great advice. I really feel for you....I've been down a similar path in the past two years, and along the way I've picked up TONS of diagnoses, but the latest one, Lyme disease, may actually be the key to my biggest (unexplained) problems: my neuro issues.
Well, obviously you really need to get to the bottom of your problems! The tests that Katie recommended are a very important start.
You said you were tested for several different autoimmune diseases...did that include celiac disease or Crohn's? I ask because of the weight loss and abdominal pain issues.
adrenal insufficiency? I know that my youngest daughter suffers from that, and she has had some of your issues, including severe fatigue and syncope (fainting).
Also, did they just do the Lyme ELISA test on you or did they run the Western Blot test, which is much more specific and sensitive?
You should be aware that nearly all labs in the country INCORRECTLY use the CDC standards for determining positive or negative on Lyme disease tests. Even the CDC says that these standards should NOT be used to diagnose, but doctors ignore this warning and use those standards anyway. The International Lyme and Associated Disease Society (ILADS) fought in court to change the current IDSA standards for diagnosis of Lyme disease and they WON....BUT the new standards won't go into effect for several months!
There are a few labs that use the more up-to-date standards; the one I used was Igenex lab.igenex.com/Website/
I actually ordered a Lyme disease Western Blot test kit from Igenex labs, took it to my doctor, who did the order and the blood draw. Then my husband took the kit to Fedex and sent it off. It cost me $475 but sure enough, I was negative by CDC standards but POSITIVE by Igenex standards.
I have had an explosion of diagnoses in the past two years, and to tell you the truth, I believe that Lyme disease triggered most of these issues. Well, either that or it's mimicking them, which it does quite well. I just started treatment yesterday....I have hopes that I will be MUCH better in a few months.
Anyway, I just thought I should share my experiences because of the very remote possibility that some of this info might be useful to you.
Best wishes and ((((hugs))))
Lyme Disease, autoimmune hepatitis, Hashimoto's thyroiditis, "lupus-like" CTD?, fibromyalgia, rheumatoid arthritis, celiac disease, asthma, psoriasis, Raynaud's syndrome, hypertension, osteopenia, sleep apnea, restless leg syndrome, GERD, degenerative disc disease, cubital tunnel, tarsal tunnelDoxycycline, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP
Darvon and Morphine Sulfate PRNautoimmunediseasesgfliving.blogspot.com