You're not alone. I was diagnosed with Fibromyalgia in 1992 and I can identify with the crushing chest pain that affects your shoulder, arm, ribcage, neck and jaw. In fact, am experiencing that at this very moment. I too, have been through rigorous cardiac screening and angiograms that show absolutely NO blockages. The chest pain is relatively new - 4 years now. I've had CT scans, MRIs, been assessed by Rheumatologists, Neurologists, Physiatrists, and a lot of other "ists" too numerous to mention. Along with the pain, I get the symptoms of sweating and dizzyness - which always brings the ambulance teams in record time. I'm getting tired of paying those bills so now I ignore the pain - much to the frustration of my friends who fear that someone is missing something in my diagnosis. So now I don't even tell them - I can't bear to have them worry along with me. It's terrifying enough for me when it happens, so I certainly don't want my children in constant distress.
The fact is, the medical profession does not know what to do with us. I'm from Canada - it's the same here. If you don't fit into one of their lists of symptoms, they throw their hands up in frustration and shake their heads. It will be up to us to figure this out. I have reduced my flareups to a great extent but still have lots to learn.
First of all - if you smoke or have any other unhealthy habits - stop. Do whatever it takes to give your body a chance to restore itself. Do not use sugar, or foods with chemicals in them - eat nothing you cannot pronounce the name of. The food you eat must be pure food - not processed. You wil notice a world of difference if you are consistent with this. One bacon and tomato sandwich can make me sick for days. First of all, I cannot tolerate wheat products. Secondly - I cannot tolerate pork and using salt is poison to me. Keep a food diary - and you will soon be able to tell what triggers your flareups.
The most help I have received is from massage therapists, physiotherapists, chiropractors, acupuncturists etc. Those are not part of our free health care in Canada and since I cannot work, I cannot access those services as often as I need to. Also, as much as it is painful - exercise is an absolute necessity for maintaining flexibility and mobility - also a challenge as our Canadian winters are not conducive to walking outside - therefore to keep up with that requires money to do it at the gym.
In addition to eating pure food - it's imperative to get rid of the chemicals most people use daily. Household cleaners and laundry products are among the most toxic and most use fragrances to cover their nasty smells. Fragrances are petroleum based - all of them! The off-gassing that occurs from fabric softeners, perfumes, hair care products etc all have an effect on our bodies. When you have FM. your body is super-sensitive and overloaded.
Is changing all of this easy? Absolutely not, but it does improve one's quality of life and if we change what we can, that's all we can do. This is an isolating condition. Friends sometimes disappear - families get tired of hearing about it - and often some people go so far as to say we are making it up. Who would choose to live with this? No One!!!
I just wanted to thank you for your courage in speaking up and sharing your symptoms - I wish I could wave a magic wand and make you feel better