Does anyone have crushing, excruitiating, breath taking, feeling like you are having a heart attack, PAINFUL SPASMS in your Mainly Chest, Neck, Jaw and sometimes your Shoulder, through to your Back and Arms. Sometimes they start in my Chest and move up to the Neck and Jaw, sometimes they start in my Neck, sometimes they start in my Jaw, you get my drift??? Like I say below I have muscle spasms in everypart of my body. I take two - 10 mg Baclofen four times a day and when the chest spasms hit, which are every day of my life, sometimes numerous times a day, I take one - 10 mg Diazepam also and after a while it takes effect and also puts me to sleep as well but when I wake up I still feel my muscles tight and very sore. Been to ER more times than can count, always the same, heart workup, normal, enzymes normal, lung workup normal, everything normal, they say Non-Cardiac muscle spasms, give me a shot, knock me out and send me home to sleep. I have had 4 heart caths since 1999 last one in December 2009 all fine. Docs baffled don't know, just say severe muscle spasms, well my heart is a muscle I quit going to ER a couple of years ago, because I can knock my own self out, without a shot and thousands of dollars on my insurance and pocketbook.
Does anyone have this problem, if so do you have diagnosis and even more important anything to keep this from happening?
I am new to this forum and website I was officially diagnosed with Fibromyalgia in 2000, The Drs flip flopped between SLE Lupus and Multiple Sclerosis from 2000 until 2004 when I was officially diagnosed with Multiple Sclerosis and took Copaxone injections for 2 years but quit on my own, now place left on body to inject due to knots under skin, but I have suffered from the symptoms since I was a child. My old MS Dr left and the new MS Dr now tells me she DOES not think I have MS so here we go with whole battery of tests all over again and the mention that it could be SLE Lupus again, (GIVE ME A BREAK). The symptoms have gotten stedily worse but in 1994, I developed the very disturbing symptoms I described above among so many other symptoms that have totally disabled me, my life and taken it's toll on my family and their lives.
I feel like my Doctors have left me high and dry, like they have abondoned me.
When I try to go to a new Neurologist they see my record and act like they are gut shot and want no part of me, they shun me. There are days I feel like I am litterally going to die! I live in Pain, Fatigue, Heat Intolerant where even going into a hot kitchen or bathroom leaves me sweating profusely and all my symptoms so bad that I have to wipe off or cool shower and then I usually an so exhausted I have to lay down and rest (or sleep) for a few
hours. On the oposite side I can go outside in 30 degree weather in a t-shirt and don't feel cold until I've been outside for quite some time. I have too many symptoms to possibly list here and some I don't know quite how to explain. BUT I AM DESPERATE AND IN NEED OF HELP!!!!!!
Can anyone HELP?????? Please Let Me Know!!!! gagirl63, Abandoned, Alone, Scared and Dying in Middle Georgia