I wondered over here from the UC board as I have been through a lot in the last few years and would love to have your opinions on what is going on with me..
So here goes in short..well as short as can be
In 2006 I was diagnosed with Ulcerative Colitis. That was in August..on the 18th I received my dx and meds to go home with.
On August 25th I Was at home and suddenly had a really bad headache..this was the type of headache that when you cough or bed it hurts even more..it was awful..the morning after and for the next couple of weeks I had a really sore and stiff neck..disturbed gait, trouble swallowing, leg weakness, and short term memory issues...This was all through September.,the pain and stiffness in my neck was dismissed by all doctors and other symptoms were just to due "stress" apparently. I had to take Ativan to loosen things up just to get to sleep. I was finally sent for an MRI on my BRAIN ONLY in November but things were NORMAL.
Then things settled down for a bit..I got pregnant, health was great..etc.etc.
about 6 months after my son was born..the symptoms started up again..memory loss, this time tingling feelings in my hands, lack of concentration etc. This time was sent to a neuro...in office exam was NORMAL and sent for evoked potentials - NORMAL and another HEAD AND NECK MRI- NORMAL.
I forgot to mention during this time I had been also haveing issues with my bladder, not emptying properly etc when to see a urologist..NORMAL.
COlitis was flaring badly at this point and was put on HUMIRA..a TNF blocker. Not sure if the same type of meds are used with MS. I was on this for almost 2 years until recently I decided to come off. I have been off for about 6 weeks now and now neuro symptoms are back again..tinglying, memory issues, but something differnet now..my left leg has a weird feeling..I can really describe it but it almost feels as though it is working too hard....or that I almost have to drag it or something....last night it had some crawling, burning sensations on the left leg as well before I went to bed but tried to ignore it and slept.
So thats my story right now..
A few questions:
1. If MRI's are done AFTER symptoms disappear does that mean the lesions disappiear as well?
2. Why did I only have my brain and neck done? I asked about the spine and they said if something was wrong it would probably show up in brain or neck. I somehow think NOT ??
3. Does this sound like MS to any of you?
your comments are welcome. Thank you
UC since Aug 2006
Been a constant battle since Feb 08 after the birth of my son
OFF HUMIRA FOR 4 weeks!
Salofalk 9 pills a day
Fish oil, VSL, Vit D, Vit C, Flax oil, reduced red meat, refined grains and dairy
Just bought physillium husks but not sure what to do with them!
Currently not in a huge flare but not perfect either...