Hi My name is Erin
I am 21 years old and I have been diagnosed with CAEBV since I was 13 years old. since then I have been on IVIG treatments every three months I was told I will never make the antibody to resolve EBV. The treatments do make me feel better but I still have a lot of weird symptoms like my extremities become icy cold but at the same time my muscles in my legs will be burning up (red and hot to the touch) and in pain. I find a hot shower or hot weather fatiguing and I am itchy alot of the time and I have a constant annoying muscle pain like someone is sticking needles in me that keeps me from sleeping along with a lot of fatigue and tremors. I have had progressively bad eye sight (near sighted) since 12 and a half, before that I had better than 20/20 vision, along with new symptoms since my early 20's like bowel problems and I am peeing more but I do not have more urine or a UTI I have what feels like eye strain and I have to pull a cool rag over my eyes because of the throbbing and headaches. I am now in college and Pursuing my RN and I have found out more about auto immune diseases and I wonder if I could possibly have MS? I know that they use IVIG to treat severe MS. If I possibly have that am I masking some things or preventing any progression? Any ideas or am I barking up the wrong tree? I have not meet anyone with MS so I am not sure exactly how bad the symptoms in the beginning are and if they might be different since I would have started as a child?
P.S. another thing I remember from being young is that alot of my photos have me with a lazy eye that went away when i started treatment.
Any help would be great