sleep and more sleep

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Regular Member

Date Joined Aug 2008
Total Posts : 105
   Posted 3/10/2010 2:44 AM (GMT -6)   
Hello everyone, haven't posted in a while.... I have to ask, has anyone else been sleeping through the day? Its not like I'm excessively fatigued; I'll wake up, go to the bathroom and I then find my self back in bed. I'll sleep 9, 10 hours and when I get up, I'm still moving slow...been taking copaxone, baclofen, citalopram,various vitamins and supplements. I can still get around, work part-time, ride my mountain bike... I'm in my mid 50's..
It seemed like a good idea at the time

Stella Marie
Veteran Member

Date Joined May 2005
Total Posts : 601
   Posted 3/18/2010 1:23 AM (GMT -6)   
Sleep disturbances are common with any neurodegenerative disease. I with go thru period of not sleeping well for several days and then I will just crash and almost sleep 20 hours. I get up for an hour or two and then just get sleepy again. The neurologist will say that maybe your body is just telling you if needs some extra rest at this time. However, fatigue is a different beast. Many of us also suffer from chronic fatigue and just feel like someone let the air out of us. If over sleeping and or fatigue are having a major impact on your life you can always take to your doctor about a Rx for Provigil. It is expensive, but is covered by most insurances. Provigil causes wakefulness with out the feeling that you are wired. It is not like you have had too much caffine, you are just awake.

Please keep us posted.

Stella Marie   Chronic Pain Forum Moderator

Progressive neurodegenerative disease called Multiple System Atrophy, muscle spasms, muscle pain, neuropathy, & neuropathic pain, central sleep apnea, osteoarthritis, and 2 pain implants – intrathecal pain medication pump and an SCS (spinal cord stimulator).  Extra fun little toys and gadgets; O2 generator and assorted wheelchairs, walkers, canes, and orthotic braces.  Med - too many too list or even care about!



New Member

Date Joined Apr 2010
Total Posts : 1
   Posted 4/8/2010 1:56 PM (GMT -6)   
I was developing the exact same thing and persuaded my MD to prescribe a very small dose of ritalin and/or adderol (highly addictive meds, used largely to treat hyperactive children), 5 mg/day.  I emailed her daily about my usage and reactions.  This gave her the confidence in me to let me increase it to 10 mg/day (the ritalin was better than the adderol and a LOT less expensive ($27/3 month supply).  It works ENORMOUSLY.  I firmly don't take more that the one pill in the morning and I dont take it at all on weekends because one habituates quickly.  Mondays are Chistmas for me.  I suggest a small, careful trial and you'll need an md's supervision becasue these meds are higly addictive and very controlled.
Let me know how it goes for you.  I've been doing this for 4 months now and it helps a great deal.  A certain discipline is required to manage it.
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