newly diagnosed

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New Member

Date Joined Mar 2010
Total Posts : 4
   Posted 3/19/2010 11:34 AM (GMT -6)   
hi all  i was diagnosed with ms on monday last.  im really scared although im trying to be really positive.  my eye went blurry about 6 wks ago and is now normal again after a dose of steroids.  my legs are cramping and im really tired.  i have to get a lumber puncture and i dont know what to!!

Stella Marie
Veteran Member

Date Joined May 2005
Total Posts : 601
   Posted 3/21/2010 1:25 PM (GMT -6)   
I am so sorry that you received this diagnosis. I have had two lumbar punctures and both went without any problems. You certainly want someone experience to do the puncture. It does take a little time to get everything set up and you into position. The doctor will move slowly and take his time. I did not feel pain, just pressure. I had no problems afterwards with leaks. I had a slight headache for about two hours. Nothing debilitating at all. After a couple of hours I was as good as gold.

Maybe some other posters will also share their experiences with you.

Stella Marie   Chronic Pain Forum Moderator

Progressive neurodegenerative disease called Multiple System Atrophy, muscle spasms, muscle pain, neuropathy, & neuropathic pain, central sleep apnea, osteoarthritis, and 2 pain implants – intrathecal pain medication pump and an SCS (spinal cord stimulator).  Extra fun little toys and gadgets; O2 generator and assorted wheelchairs, walkers, canes, and orthotic braces.  Med - too many too list or even care about!



Regular Member

Date Joined Mar 2010
Total Posts : 230
   Posted 3/21/2010 7:40 PM (GMT -6)   
Sorry to hear of your recent diagnosis.

I just had a lumbar puncture done in January. The procedure was done in the Radiology department at my local hospital using a fluoroscopy-guided technique. They tilted the head of the bed up during the procedure to increase the flow of spinal fluid. They use lanicane to numb you up first and there was really no pain just a little pressure. Some people do experience headaches after the procedure.

I'm wierd, I had pain in my forearms, back and neck for a number of days following the procedure. I was able to totally eliminate the discomfort by laying down flat. I also had some wierd hearing problems that corrected once the fluid and pressure in my spine returned to normal.

My results showed positive for ms, however i have no lesions on my brain or spine mri's to confirm the diagnosis.

Hope that things work out well for you.
Peace and Healing
Lyme Disease - Doxycyline, IV-Rocephin, Gabapentin, Vitamins B,C & D

New Member

Date Joined Mar 2010
Total Posts : 4
   Posted 3/22/2010 5:55 PM (GMT -6)   
thanks a million folks for coming back to me. its so good to know that there are others out there that know what the story is.

Motown John
Regular Member

Date Joined Jun 2005
Total Posts : 475
   Posted 3/31/2010 8:22 AM (GMT -6)   
....just do NOT get out of the bed for 1 hour post lumbar....or...from what I hear MONSTER headaches....Johntongue
DX'ed June 21st, 1987

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