ampyra and insurance

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ppm guy
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Date Joined Apr 2010
Total Posts : 1118
   Posted 5/24/2010 4:44 PM (GMT -7)   
hi msers,  got a call from my neuros office today. my hmo(kaiser permanente)has negotiated a price with accorda for ampyra.i have kaiser senior advantage. kaiser and medicare coinsurance. my copayment is $25.00 a month. i am jazzed. i start meds on wednesday.                   all the best ppm guy

Gretchen1
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Date Joined Jan 2007
Total Posts : 3550
   Posted 5/24/2010 6:20 PM (GMT -7)   
Wow!! Great news!  I hope it helps.  I have heard great things about this med.
Gretchen  ~  diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


Sweetlydia66
Regular Member


Date Joined Mar 2007
Total Posts : 260
   Posted 5/26/2010 5:09 PM (GMT -7)   
Thats awesome ppm. I have been on it for just about 2 months now. Feelin good. Walking alot with my cane. Woo Hoo!!! Hope u get good results!!!!!
Dx MS December, 2006....
Started Tysabri March, 2008... Stopped March 2010
Started Avonex March 2010
Ampyra
Cymbalta


mystery reader
Regular Member


Date Joined Jun 2007
Total Posts : 257
   Posted 6/2/2010 6:45 AM (GMT -7)   
LYNN --- HI!!! That is great that it is helping.

My neuro sent in request for ampyra about two weeks ago. Nurse told me she checked with my insurance and it will cover it 100%. I hope she is correct. Still waiting to be contacted. I figure I will start calling the company about it next week
Barb/mystery reader
Diagnosed April 2007
 


ppm guy
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Date Joined Apr 2010
Total Posts : 1118
   Posted 6/3/2010 11:50 AM (GMT -7)   
hi all,  that is a good plan. Accordas website has a status link, and phone # .   calling and talking to a service rep. can speed your rx. Also for low and middle income patients their assisstance program states, no more than $40.00 a month copay. This drug has helped me in just one week. Do yourself a favor and try it. It is not just for walking, it provides improved overall nuerologic function.    ppm guy 

WalkingThroughLife
New Member


Date Joined Jun 2010
Total Posts : 8
   Posted 6/4/2010 4:35 PM (GMT -7)   
I'm so PSYCHED!!!! that this is working for you guys!!!!

So it's effective for people with PPMS? You said (ppm, I think?) that it was created for PPMS.... Is that what you have? How about you, Mystery?

And what kinds of improvements are you noticing? What's your before-and-after???!!!!

This could be amazing. : )

Cecilia

ppm guy
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Date Joined Apr 2010
Total Posts : 1118
   Posted 6/6/2010 11:36 AM (GMT -7)   
hi Cecilia, yes i am ppms, and yes ampyra does work for ppms. It works for all ms types. It works by blocking loss of potassium from our nervous system. Potassium carries the nerve impulse from the brain to the desired muscle,thus improved neurologic function. As for the before and after. I am ppms, dxed 20 years ago. I walk with the help of cane, walker, and scooter. I can now stand without tremors or spasms and take off walking almost immediately. it flat out makes moving arms and legs easier therefore reducing spasticity and fatigue. I also drove from Los Angeles to Las Vegas for memorial weekend. A 4.5hr. drive with no bathroom stops WOO HOO!   My opinion only. If you have permanent disablity, there is help, and worth  the hassle of trying to get this med.   all the best ppm guy

WalkingThroughLife
New Member


Date Joined Jun 2010
Total Posts : 8
   Posted 6/6/2010 11:55 AM (GMT -7)   
I am so excited!! I read on another posting somewhere that there is a generic version called 4AP.

Did any of you have severe foot pain? Ted says that when he's overdone it, it feels like he's standing on feet that have no skin.

I'm so happy for you guys!
Cecilia

WalkingThroughLife
New Member


Date Joined Jun 2010
Total Posts : 8
   Posted 6/6/2010 12:03 PM (GMT -7)   
Just found this on Wikipedia....

4-AP (Ampyra) is most effective in patients with the chronic progressive form of MS, in patients who are temperature sensitive, and in patients who have had MS for longer than three years.
http://en.wikipedia.org/wiki/4-Aminopyridine

Cecilia

mystery reader
Regular Member


Date Joined Jun 2007
Total Posts : 257
   Posted 6/14/2010 6:34 AM (GMT -7)   
Insurance (HMO) turned down request. Their reason -- I can walk independently with a cane. That is not an indication (according to them) that I have a gait problem. How can you walk independently if you need a cane? So now my neuro is sending me to pt for a gait evaluation and then he may appeal.

Cecilia -- I am still classified as RR.
Barb/mystery reader
Diagnosed April 2007
 


ppm guy
Veteran Member


Date Joined Apr 2010
Total Posts : 1118
   Posted 6/14/2010 11:24 AM (GMT -7)   
hi everyone,  Please listen up!!!!!!     Do you have any permanent disability?  Do you have fatigue everyday?   Call or E-MAIL your dr. today, and tell him or her that you want Ampyra. not only can I walk better, I feel soooooooo much better. Today is my 19th day on ampyra. The first 10 days I thought I felt something. The next 9 days have been a rush. All good days, walking, talking and vary little fatigue. My opinion only; All msers with permanent injury should be on Ampyra. Quality of life is waiting for you.     be well    ppm guy

WalkingThroughLife
New Member


Date Joined Jun 2010
Total Posts : 8
   Posted 6/14/2010 11:49 AM (GMT -7)   
PPM- fabulous!!!! I just called Ted who is on his way to a GP appointment- he's going to ask about it. : )

Mystery- I read somewhere that there is a generic version of Ampyra- 4AP, I think.... Maybe you could get that? One person said that their doc and their insurance company haggled out a compromise price.... I don't know. Just some ideas.

It makes me mad that Viagra is covered and Ampyra isn't.... Both are important, but it sounds like Ampyra affects quality of life even more. It's hard to be patient sometimes....

Cecilia

msjam
New Member


Date Joined Jun 2010
Total Posts : 1
   Posted 6/17/2010 5:56 PM (GMT -7)   
Hi Im new here I have PPMS Am on Rebif and going to try Ampyra. I lose my insurance in 2 mo. and have been turned down for both medi/medi, besides moving to another country, does anyone have ANY ideas?
Congrats to all those doing well on Ampyra & I hope those who want it can get it.

Post Edited (msjam) : 6/17/2010 7:03:23 PM (GMT-6)


WalkingThroughLife
New Member


Date Joined Jun 2010
Total Posts : 8
   Posted 6/17/2010 6:03 PM (GMT -7)   
Does the other country have national health coverage? I heard that there is a generic version 4-AP. I also read somewhere that a person's health insurance people called and negotiated a price with Ampyra.

That's all the ideas I've got. Good luck, msjam.

WalkingThroughLife
New Member


Date Joined Jun 2010
Total Posts : 8
   Posted 6/17/2010 6:03 PM (GMT -7)   
Oh! It was ppm guy. Sorry about that, ppm!

ppm guy
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Date Joined Apr 2010
Total Posts : 1118
   Posted 6/18/2010 11:45 AM (GMT -7)   
hi msjam,  Sorry to hear your predicament, that sucks!!!!!   I am also ppms, and been on avonex for 6 years. It didnt help, discontinued in 2003. Walking is my major sx. for the last 6 to 7 years i have used just baclafen and vicodin and otc pain relievers. And finally I started ampyra 3 weeks ago. I am now happy with my drug regimen.                                                                                 Since you have 2 months remaining on your insurance , I believe getting on ampyra and finding out if you are a responder, is huge.  If you respond to ampyra, try calling Accordas patient assistance program and see if they can help. Outside the USA , Biogen is handling distribution. Is Rebif helping? Maybe your dr. can help you form a roadmap to get you to your naxt provider . How about cobra?                 good luck and good health ,  ppm guy                                                                                                                                        

ppm guy
Veteran Member


Date Joined Apr 2010
Total Posts : 1118
   Posted 6/18/2010 12:04 PM (GMT -7)   
hi WTL,   kaiser Permanente has its own specialty pharmacy. k.p. has included ampyra on its brand name drug listing. Also because it is a oral medication the price is cheaper. I don't know whose paying what and i don't care.        all the best ppm guy

Suboor
New Member


Date Joined Jun 2010
Total Posts : 1
   Posted 6/21/2010 5:02 AM (GMT -7)   
hiiiiii

Jimbob
New Member


Date Joined Jul 2010
Total Posts : 1
   Posted 7/30/2010 8:36 AM (GMT -7)   
Been on Ampyra for 16 days now. Not sure it is helping. I have been approved by my insurer for three months, so I will do the full approval period before deciding with my Neuro whether or not to continue. Anyone else had a slow initial response. I guess I might be a non-responder. Still hopeful though!!

Jimbob (ppms)
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