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New Member

Date Joined May 2010
Total Posts : 10
   Posted 6/13/2010 4:12 AM (GMT -6)   

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I have had many problems in last 10 years. I have been diagnosed with Fibromyalgia for 10 years. Have Spinal stenosis. I am in constant pain. Got tingling and pins and needles feeling, sensation of heat and pain in right thigh for about 5 years now.My Physiatrist says he feels it is due to stenosis and so did a  back doctor I went to. Have had many MRI'S no signs of lesions to say it is MS which was a thought I had. I did have a mini (TIA)stroke 2 1/2 years ago which I totally recovered from. Took 7 months to recover. Last year my hand started tingling and when I woke up felt like it was 3 times its size. Always had to shake it. Could not close my hand. It would ache so bad thru out the day. Took an EMG and doc said it was carpal Tunnel. Went to a hand surgeon and he said he did not think it was carpal tunnel. Had me wear a brace at night which I did not do on a consistant basis and within about a month it disappeared. Then about 2 months ago it started again except this time I had not only pain in the hand but down my left side around buttock area, upper back, my mouth, and my eyes in the morning hard to open. I went to the physiatrist who I see once a month because he gives me my pain meds for my fibro and he said I was totally inflammed within my body. I asked him what is going on and he still insists that I have carpal tunnel in my hand. He told me he wants to redo the EMG test next month to prove this to me and meanwhile he gave me Ibroprofen which completely took away the pain and sensation in my hand and also my mouth and my eyes with in one day. He gave me Lidocaine shots in my muscles in my buttocks and upper back which helped a great deal but still in pain in buttocks area into the hip and down leg within two days after the shots. 
If I had carpal tunnel would the Ibroprofen make the smyptoms completely go away? Is this typical of carpal tunnel?Or can all these symptoms be that of MS or just Fibro. My friend who has MS says her flair ups are so similar to mine. I have been to 5 neurologists in the past few years and none want or can help me. I am so frustrated and confused. I take oxycontin and morphine for pain but then my friends and family tell me they think that is what is making it  worse. I reduced the amount I have taken throughout the years to half but then this flair up caused me to go up to my high dosage again.
Have been to so many doctors through the years and cannot get help getting a true diagnosis of what I have.

Regular Member

Date Joined Sep 2009
Total Posts : 122
   Posted 6/14/2010 1:43 PM (GMT -6)   
All of these symptoms can and with many people are symptoms of Fibro. I've run the gambit on tests as well until I got the Fibro diagnosis. I also had a mini stroke 2 yrs ago and recovered. I can't tolerate any meds for Fibro so just have to go through it. If you're not comfortable with your Dr's diagnosis than maybe you can research reperable websites such as Johns Hopkins or Mayo Clinic and see if it is the meds your on.

This is no Social Crisis... Just another Tricky Day (The Who)


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