I have had others say they had symptoms for a while before the lesions showed up. If you have L'hermittes, you might ask for a lumbar-spine MRI. I have had that as well (I have since lost that symptom) and I do have a few lumbar lesions. I don't have any cervical-spine lesions. There is that theory that early MS may not show small lesions. Have you had an evoked potentials test? That is a good one to have. That test is pretty reliable. It was a very significant part of my diagnosis. I had extremeties, vision and hearing.
For me, by the time I had symptoms, I had three lesions. One was quite large and resulted in temporarily losing the ability to walk. I was diagnosed very quickly but this is not usual.
It is very difficult to get a diagnosis without lesions on an MRI. Just keep at the doctors. Good luck.
Gretchen ~ diagnosed with MS July 2006
I have no lesions on my soul and so I will live with no limits.