Hi JoAnn & Gretchen,
When I first had the tingling and went to the neuro back in 2001 she did every test under the sun, but wouldn't do one for lyme eventhough I told her about our camping, hiking etc (I didn't have a bull's eye rash). She only found bulging discs' in my neck which she said were causing the tingling. It wasn't until it got much worse and I was in seeing my GP for my yearly pap and mentioned what was going on and what the neuro had told me. She was the one that said that that couldn't be and I should have it checked out. I went back to the same neuro because I figured she already had run a bunch of stuff the first time 5 years before, and I also wanted to confront her about what my GP had said. She admitted that that was true (that I wouldn't have tingling on both sides and also in my feet and legs from bulging discs in my neck). Then she re did all her test including the EMG, which she does, but not the MRI. Everything was OK except for an elevated ANA and some of her neuro exams that she performed were off. She wanted me to go to PT (which she does in her office) again which did no good the first time and I really didn't want to waste my money again. I asked about a lyme test again, she still didn't want to do one, but i got her to order one anyway. CDC pos on the western blot. That's when I started to really look into lyme. Until that time I trusted my doctors to know what they were talking about. I'm afraid that this is just another symptom of things getting worse.
I haven't found anything that can cause the pressure in the neck thing, so I'm guessing it's the lyme, or the lyme has triggered something else and it just hasn't gotten so obvious that the doctors can tell what it is yet. Thanks, KO
P. S. Gretchen
is it only lose of vision or could drastic change also be a sign/symptom of MS. The reason I ask is because when I turned 40 right around the time the tingling started my vision went from better than 20/20 (the doctor used to kid calling me super vision) to being blurry to the point that it really scared me because this happened literally overnight. I was scared enough to see a doctor about it and I really try to avoid doctors at all cost, which is impossible now.
01 Tingling in fingers/toes both sides, not tested at that time for LD
07 Summer pos. WB, diag with LD, neg for co-infections thru Igenex
Abx - Doxy 100mg 2x/day for 3 weeks (before diagnosis)
Amoxicillin 1gm 2x/day for 1 month
Amoxicillin 1gm 3x/day with Probenecid 500mg 2x/day 5 months
Dr. Zhang's protocol stopped after 6 months symptoms returned. Started Buhner's protocol May 2009