Question about Face Twitching and Pain in please.

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New Member

Date Joined Jul 2010
Total Posts : 7
   Posted 7/25/2010 7:20 PM (GMT -6)   
My name is Angie and im 38 years old from Ohio. I am currently being tested for MS.
I have had 1 MRI and am being sent for another.  I have symptoms that are not limited to, ringing in my ears, and I get these moments of dizzy feelings on occasion that last only seconds. I have numbness in my fingers, and legs. I have trouble thinking, and forget simple things, like certian words when im trying to speek. I have forgoten many things. Im always tired, and I am depressed. Reciently (within the past 3 weeks) my right knee hurts so bad, I went to ER twice, they did an xray and a catscan and it showed nothing. It is so bad I can barly walk on it, the pain's shoot all the way up my leg. I am always complaining of pain somplace, and I actually hurt. I can't even walk around the mall or go shopping without suffering that night or the next morning from feet pain.
Last night my face started to twitch, it starts in my upper lip and is gradually moving up my face...its so annoying!
I am just wondering if anyone else is experiencing the twitching and severe pain like I am. Next to child birth, the pain in my knee is a close second, I woke up in the middle of the night crying, and knowing there was nothing I could do.
Tonight I lay here with a twitching face and im this sompthing severe?
Thank you for any suggestions, or help in advance.

challenged nurse
Regular Member

Date Joined May 2010
Total Posts : 69
   Posted 7/25/2010 7:41 PM (GMT -6)   
Angieohiogirl, I am from the Lupus form, but I am having the same symptoms as we speak. I am scheduled to go to UAB on wednesday to see a specialist. My current rheumy doesn't know what is wrong. I have had several xrays and CT scans but nothing is showing up. I was tested for MS but it was negative.
DX: Lupus(UCTD), Asthma, Mitral Valve Prolapse, Heart Murmur, Anemia, Vitamin D def., B12 def, Hypertension r/t lupus, TIA, muscle weakness, numbness, tingling, headaches, night and day sweats and IBS.

Meds: Imuran 100mg, Prednisone 60mg, drisdol 50,000 units weekly, b12 injections monthly, Protonix, Zantac, Tramadol 4 times daily prn, Align, Kapidex, Amitza, Miralax, Vaseretic/HCTZ Aspirin.

Allergies: Cipro and Bactrim
I can do all things through Christ that strengthens me.

New Member

Date Joined Jul 2010
Total Posts : 7
   Posted 7/25/2010 8:08 PM (GMT -6)   
Challenged Nurse,
I had never heard of Lupus untill now, and I just did a bit of research on it. WOW,
I was dx with Mitral Valve Prolapse, Vitamin D def, i too have muscle weakness, numbness, tingling, headaches, night and day sweats and im developing IBS.

How do you test for Lupus? From the quick research I did, i gather that you just get blood work from a family Dr?

Regular Member

Date Joined Oct 2009
Total Posts : 70
   Posted 7/26/2010 8:06 AM (GMT -6)   
Please get tested for Lyme disease. And find a Dr. that know how to test and treat it.

New Member

Date Joined Jul 2010
Total Posts : 7
   Posted 7/28/2010 2:47 PM (GMT -6)   
I went yesterday and had another MRI done of my brain and my neck, with and without contrast. It took 2 hours to complete. I asked for a copy. I came home and put it in and there is no writen report just photos of my brain and neck. I have no idea what im looking at. Frustrated that I have to wait to see my Neuro.

Today is a terrible day. I woke with a terrible terrible headach, and went to the store. I have no air in my car so I think I made myself worse, my face became all numb and tingly and I thought I might pass out. I came right home and drank lots of water. Im unable to move my bowls for 4 days now (prior to that I had taken exlax to help out and it worked) but since then Im not able too. I feel so terrible, I ach all over and am so tired.
I have a 10 year old who play's football and I feel terribly guilty not going to watch him at practice each night, so I drag myself out there with a smile and sit in this unforgiving heat....i don't know how im managing. I feel as though I could pass out at times. But i keep pushing because im affraid that one day I may not be able too, so I go now.
Im missrable and im getting so depressed, im tired of being/feeling so sick. I just hope I find answers soon.

Regular Member

Date Joined Aug 2010
Total Posts : 124
   Posted 8/13/2010 5:54 PM (GMT -6)   
I, too, have muscle spasms in my face.  Sometimes around my mouth everyday around my eye.  It is annoying!!!!  My daughter is a cosmotologist and she told me that something they were taught in class (when learning about facials) that generally facial spasms are due to a lack of sleep.  Now that is on the average person, so for those of us with potienal MS and Lupus, we don't sleep right and if you're like me, I'm lucky if I sleep 2 hours a night and occationally I will sleep all night with only a couple trips to the bathroom or being jerked awake by spasms and cramps elsewhere.  Try to get more sleep and if you figure it out please let me know how you do.  Good luck.
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